What is Rosai-Dorfman syndrome?
Rosai-Dorfman syndrome is also known as sinus histiocytosis with massive lymphadenopathy. It is characterized by the overproduction of histiocytes in the lymph nodes.
How do members experience Rosai-Dorfman syndrome?
Top 5 symptoms reported by people with Rosai-Dorfman syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Skin lesions
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Rosai-Dorfman syndrome*
Who has Rosai-Dorfman syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 0 | |
| 40s | 1 | |
| 50s | 3 | |
| 60s | 3 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1 | |
| Female | 6 |