Sphincter of Oddi dysfunction

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is sphincter of Oddi dysfunction?

The sphincter of Oddi is a circular muscle that controls the flow of bile and pancreatic juices into the intestinal tract. When it does not function as it should it prevents the bile and pancreatic juice from flowing through causing a backup of digestive juices.

Common symptoms reported by people with sphincter of Oddi dysfunction

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with sphincter of Oddi dysfunction

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Type
Procedures
How many have tried
2
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Marinol)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Hysingla ER)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Levsin)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Vyvanse)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Creon)
Type
Prescription Drug
How many have tried
1

Data from patients with sphincter of Oddi dysfunction, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with sphincter of Oddi dysfunction

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (4 evaluations)
Side effects
chronic pain nausea and vomiting
Total evaluations
4
Tried for
pain (3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Celebrex)
Perceived effectiveness
for pain (2 evaluations)
Side effects
drowsiness
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Marinol)
Perceived effectiveness
for pain (3 evaluations)
Side effects
diarrhea excess saliva 1 more
Total evaluations
3
Treatment name(s)

(Hysingla ER)
Perceived effectiveness
for pain (3 evaluations)
Side effects
distractibility dizziness 1 more
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(Levsin)
Perceived effectiveness
for sphincter of Oddi dysfunction (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Vyvanse)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Pamelor)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Creon)
Perceived effectiveness
for sphincter of Oddi dysfunction (2 evaluations)
Side effects
Total evaluations
2
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with sphincter of Oddi dysfunction, who reported starting treatments within the last 5 years.
Last updated:

Who has sphincter of Oddi dysfunction on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 10
30s 18
40s 34
50s 30
60s 11
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 13
30-39 years 18
40-49 years 9
50-59 years 8
60-69 years 0
70+ years 0

Sex

Distribution of sex

92% Female
8% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 60
Not Diagnosed 9

These charts show data from sphincter of Oddi dysfunction patients who have completed their condition history
Last updated: