Guillain-Barré syndrome

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What is Guillain-Barré syndrome?

Guillain Barre Syndrome is an acute inflammatory autoimmune neuritis caused by T cell- mediated cellular immune response directed towards peripheral myelin. The process is often preceded by a viral or bacterial infection, surgery, immunization, lymphoma, or exposure to toxins.

Common symptoms reported by people with Guillain-Barré syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Guillain-Barré syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
4
Tried for
Guillain-Barré syndrome (4)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2) Guillain-Barré syndrome (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Physical Therapy
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Morphine ER)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Centrum Multivitamin)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Cesamet)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
1
Tried for
pain (1)

Data from patients with Guillain-Barré syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Guillain-Barré syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for Guillain-Barré syndrome (3 evaluations)
Side effects
flu like symptoms low grade fever 3 more
Total evaluations
4
Tried for
Guillain-Barré syndrome (4)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (6 evaluations)
Side effects
daytime sleepiness excessive daytime sleepiness (somnolence) 2 more
Total evaluations
6
Tried for
pain (2)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (2) Guillain-Barré syndrome (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Morphine ER)
Perceived effectiveness
for pain (2 evaluations)
Side effects
constipation nightmares
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Centrum Multivitamin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Cesamet)
Perceived effectiveness
for pain (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Guillain-Barré syndrome, who reported starting treatments within the last 5 years.
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Who has Guillain-Barré syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 13
30s 22
40s 32
50s 35
60s 37
70+ 14
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 17
20-29 years 10
30-39 years 14
40-49 years 13
50-59 years 14
60-69 years 5
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 64
Female 101

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 93
Not Diagnosed 5

These charts show data from Guillain-Barré syndrome patients who have completed their condition history
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