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How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
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With each piece of data you share, you’re helping PatientsLikeMe and our medical research partners understand:
How do people experience each condition differently, and why?
What improves health and life for different people, and why?
How can we measure that improvement faster and more effectively, and accelerate clinical trials?
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…for you, for others, for good.
You have already helped us learn:
Lithium carbonate wasn't helping ALS patients, and we learned it faster than the clinical trials did. Read about it in
Insomnia is more common—in fact worse—for people with chronic conditions. Read about it on the
Interacting with other PatientsLikeMe members improves your health. Read it on
The severity of Parkinson's Disease symptoms changes faster than researchers thought, so clinical trials should be designed differently. Read about it on
What is monomelic amyotrophy?
Monomelic amyotrophy is a rare non-treatable musculoskeletal disease. Primarily affecting males aged 15-25, it is characterized by a gradual onset of muscle atrophy which after a few years, becomes non-progressive.
Common symptoms reported by people with monomelic amyotrophy
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
February 21, 2018