Monomelic amyotrophy

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What is monomelic amyotrophy?

Monomelic amyotrophy is a rare non-treatable musculoskeletal disease. Primarily affecting males aged 15-25, it is characterized by a gradual onset of muscle atrophy which after a few years, becomes non-progressive.

Common symptoms reported by people with monomelic amyotrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with monomelic amyotrophy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
monomelic amyotrophy (1)
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with monomelic amyotrophy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with monomelic amyotrophy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Abilify)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (1 evaluation)
Side effects
blurry vision dry mouth
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Hospitalization movement of spinal cord stimulator leads 1 more
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for pain (2 evaluations)
Side effects
dizziness and feeling faint
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for monomelic amyotrophy (1 evaluation)
Side effects
pain
Total evaluations
1
Tried for
monomelic amyotrophy (1)
Treatment name(s)

(Topamax)
Perceived effectiveness
for pain (1 evaluation)
Side effects
nocturnal urinary incontinence
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with monomelic amyotrophy, who reported starting treatments within the last 5 years.
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Who has monomelic amyotrophy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from monomelic amyotrophy patients who have completed their condition history
Last updated:
No data

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