What is post-treatment Lyme disease syndrome?
Post-treatment Lyme disease syndrome (PTLDS), also known as 'chronic Lyme disease', is characterized by persistent symptoms following presumed infection with borrelia burgdorferi. Symptoms may include fatigue, joint pain, or muscle aches along with headaches or difficulty thinking or concentrating.
How do members experience post-treatment Lyme disease syndrome?
Top 5 symptoms reported by people with post-treatment Lyme disease syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for post-treatment Lyme disease syndrome*
Who has post-treatment Lyme disease syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 11 | |
| 30s | 41 | |
| 40s | 64 | |
| 50s | 104 | |
| 60s | 82 | |
| 70+ | 52 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 54 | |
| Female | 296 |