Niemann-Pick Disease

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What is Niemann-Pick Disease?

Niemann-Pick disease is an inherited condition involving lipid metabolism, which is the breakdown, transport, and use of fats and cholesterol in the body. Symptoms are related to the organs in which lipids accumulate.

Common symptoms reported by people with Niemann-Pick Disease


Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Niemann-Pick Disease

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Type
Prescription Drug
How many have tried
1
Tried for
Niemann-Pick Disease (1)

Data from patients with Niemann-Pick Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Niemann-Pick Disease

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Perceived effectiveness
for Niemann-Pick Disease (1 evaluation)
Side effects
How many evaluations
2
Tried for
Niemann-Pick Disease (1)

Data from patients with Niemann-Pick Disease, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Niemann-Pick Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 12
20s 2
30s 3
40s 2
50s 1
60s 1
70+ 0

Sex

Distribution of sex

43% Female
57% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Types
Condition Types Proportion # of patients
Type A 0
Type B 1
Type C 7
Type D 0
Type E 0
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 16
Not Diagnosed 0

These charts show data from NPD patients who have completed their condition history
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