Niemann-Pick disease

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What is Niemann-Pick disease?

Niemann-Pick disease is an inherited condition involving lipid metabolism, which is the breakdown, transport, and use of fats and cholesterol in the body. Symptoms are related to the organs in which lipids accumulate.

Common symptoms reported by people with Niemann-Pick disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with Niemann-Pick disease

No data

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Got a question about living with Niemann-Pick disease? Members in the forum might have the answers.

Compare treatments taken by people with Niemann-Pick disease

No data

Let’s build this page together! When you share what it’s like to have Niemann-Pick disease through your profile, those stories and data appear here too.

Got a question about living with Niemann-Pick disease? Members in the forum might have the answers.

Who has Niemann-Pick disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 10
20s 4
30s 4
40s 3
50s 1
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

52% Female
48% Male

Types
Condition Types Proportion # of patients
Type A 0
Type B 1
Type C 11
Type D 0
Type E 0
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 14
Not Diagnosed 1

These charts show data from Niemann-Pick disease patients who have completed their condition history
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