Li-Fraumeni syndrome

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What is Li-Fraumeni syndrome?

Li-Fraumeni syndrome is a rare genetic condition that greatly increases a person’s chances of developing cancer. It can cause multiple cancers throughout a patient’s lifetime, with most occurring in childhood or early adulthood. The condition is a result of a mutation in the TP53 gene.

Common symptoms reported by people with Li-Fraumeni syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Li-Fraumeni syndrome

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Got a question about living with Li-Fraumeni syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Li-Fraumeni syndrome

Let’s build this page together! When you share what it’s like to have Li-Fraumeni syndrome through your profile, those stories and data appear here too.

Got a question about living with Li-Fraumeni syndrome? Members in the forum might have the answers.

Who has Li-Fraumeni syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 1
40s 1
50s 2
60s 0
70+ 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 5

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 0

These charts show data from Li-Fraumeni syndrome patients who have completed their condition history
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Let’s build this page together! When you share what it’s like to have Li-Fraumeni syndrome through your profile, those stories and data appear here too.

Got a question about living with Li-Fraumeni syndrome? Members in the forum might have the answers.