Pantothenate kinase associated neurodegeneration

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What is pantothenate kinase associated neurodegeneration?

Pantothenate kinase-associated neurodegeneration (PKAN) is characterized as an accumulation of iron in the brain.

Common symptoms reported by people with pantothenate kinase associated neurodegeneration

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with pantothenate kinase associated neurodegeneration

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Compare treatments taken by people with pantothenate kinase associated neurodegeneration

Let’s build this page together! When you share what it’s like to have pantothenate kinase associated neurodegeneration through your profile, those stories and data appear here too.

Got a question about living with pantothenate kinase associated neurodegeneration? Members in the forum might have the answers.

Who has pantothenate kinase associated neurodegeneration on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 0
50s 0
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 0

These charts show data from pantothenate kinase associated neurodegeneration patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have pantothenate kinase associated neurodegeneration through your profile, those stories and data appear here too.

Got a question about living with pantothenate kinase associated neurodegeneration? Members in the forum might have the answers.