Congenital nystagmus

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What is congenital nystagmus?

Congenital nystagmus is characterized by involuntary, rhythmic eye movements. Most patients with congenital nystagmus present signs within the first several months of life.

Common symptoms reported by people with congenital nystagmus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with congenital nystagmus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Stresam)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Serax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with congenital nystagmus, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with congenital nystagmus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
drunk feeling migraine headaches 1 more
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Abilify)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
stiffness in jaw tremor in hands
Total evaluations
3
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
for fatigue (5 evaluations)
Side effects
constipation feet tingling 1 more
Total evaluations
5
Tried for
fatigue (1)
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
pain
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Stresam)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Provigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Serax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
increased need for sleep
Total evaluations
1
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with congenital nystagmus, who reported starting treatments within the last 5 years.
Last updated:

Who has congenital nystagmus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 0
30s 2
40s 3
50s 3
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 4

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 0

These charts show data from congenital nystagmus patients who have completed their condition history
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