POTS (Postural Orthostatic Tachycardia Syndrome)

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What is POTS (Postural Orthostatic Tachycardia Syndrome)?

Postural orthostatic tachycardia syndrome is a condition of orthostatic intolerance, in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia.

Common symptoms reported by people with POTS (Postural Orthostatic Tachycardia Syndrome)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with POTS (Postural Orthostatic Tachycardia Syndrome)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Florinef)
Type
Prescription Drug
How many have tried
38
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
21
Check to add this treatment to your profile
Treatment name(s)

(Tenormin)
Type
Prescription Drug
How many have tried
11
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
10
Tried for
Insomnia (5) Pain (5)
2 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
9
Tried for
Pain (9)
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
8
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
8
Tried for
Pain (8)
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Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
7
Check to add this treatment to your profile
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
6
Tried for
Pain (6)
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Treatment name(s)

(Mestinon)
Type
Prescription Drug
How many have tried
6

Data from patients with POTS (Postural Orthostatic Tachycardia Syndrome), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with POTS (Postural Orthostatic Tachycardia Syndrome)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Florinef)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (12 evaluations)
Side effects
Migraine headaches Chronic headaches 5 more
How many evaluations
15
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (7 evaluations)
Side effects
Abdominal cramps Abdominal pain 4 more
How many evaluations
7
Check to add this treatment to your profile
Treatment name(s)

(Tenormin)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (5 evaluations)
Side effects
Chronic Cough Flu like symptoms
How many evaluations
5
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (2 evaluations)
Side effects
How many evaluations
3
Tried for
Insomnia (5) Pain (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Constipation Dizziness with nausea 4 more
How many evaluations
3
Tried for
Pain (9)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (2 evaluations)
Side effects
Nausea Nausea and vomiting
How many evaluations
2
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Nausea Dizziness/walking like I'm drunk 1 more
How many evaluations
2
Tried for
Pain (8)
Check to add this treatment to your profile
Treatment name(s)

(Inderal)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (5 evaluations)
Side effects
Depressed mood
How many evaluations
5
Check to add this treatment to your profile
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Acid reflux Gastric Ulcer 1 more
How many evaluations
3
Tried for
Pain (6)
Check to add this treatment to your profile
Treatment name(s)

(Mestinon)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (3 evaluations)
Side effects
Kidney Pain Lightheadedness 1 more
How many evaluations
3

Data from patients with POTS (Postural Orthostatic Tachycardia Syndrome), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has POTS (Postural Orthostatic Tachycardia Syndrome) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 48
20s 112
30s 94
40s 82
50s 51
60s 17
70+ 2

Sex

Distribution of sex

91% Female
9% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 132
20-29 years 56
30-39 years 37
40-49 years 36
50-59 years 10
60-69 years 1
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 274
Not Diagnosed 52

These charts show data from POTS patients who have completed their condition history
Last updated: