Postural orthostatic tachycardia syndrome

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What is postural orthostatic tachycardia syndrome?

Postural orthostatic tachycardia syndrome is a condition of orthostatic intolerance, in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia.

Common symptoms reported by people with postural orthostatic tachycardia syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with postural orthostatic tachycardia syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Florinef)
Type
Prescription Drug
How many have tried
32
Treatment name(s)

(ProAmatine)
Type
Prescription Drug
How many have tried
15
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
14
Tried for
Pain (8) Insomnia (6)
2 more
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
11
Treatment name(s)

(Metoprolol Tartrate)
Type
Prescription Drug
How many have tried
10
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
9
Tried for
Pain (8) Insomnia (2)
Treatment name(s)

(Tenormin)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
8
Tried for
Pain (8)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
6
Tried for
Pain (6)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
6

Data from patients with postural orthostatic tachycardia syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with postural orthostatic tachycardia syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Florinef)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (12 evaluations)
Side effects
Weight gain Abdominal cramps 9 more
Total evaluations
17
Treatment name(s)

(ProAmatine)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (8 evaluations)
Side effects
Abdominal cramps Head pressure 4 more
Total evaluations
8
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (7 evaluations)
Side effects
Weight gain Acid reflux 3 more
Total evaluations
10
Tried for
Pain (8) Insomnia (6)
2 more
Treatment name(s)

(Inderal)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (6 evaluations)
Side effects
hypotension migraine 2 more
Total evaluations
6
Treatment name(s)

(Metoprolol Tartrate)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (5 evaluations)
Side effects
hypotension Cold chills 4 more
Total evaluations
5
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Weight gain Excessive appetite 1 more
Total evaluations
4
Tried for
Pain (8) Insomnia (2)
Treatment name(s)

(Tenormin)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (3 evaluations)
Side effects
Total evaluations
3
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Nausea
Total evaluations
3
Tried for
Pain (8)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (6)
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (5 evaluations)
Side effects
Heart rate increased high blood pressure (hypertension) 1 more
Total evaluations
5
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with postural orthostatic tachycardia syndrome, who reported starting treatments within the last 5 years.
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Who has postural orthostatic tachycardia syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 43
20s 197
30s 188
40s 155
50s 83
60s 48
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 216
20-29 years 92
30-39 years 67
40-49 years 54
50-59 years 18
60-69 years 3
70+ years 0

Sex

Distribution of sex

93% Female
7% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 454
Not Diagnosed 72

These charts show data from POTS patients who have completed their condition history
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