POTS (Postural Orthostatic Tachycardia Syndrome)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is POTS (Postural Orthostatic Tachycardia Syndrome)?

Postural orthostatic tachycardia syndrome is a condition of orthostatic intolerance, in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia.

Common symptoms reported by people with POTS (Postural Orthostatic Tachycardia Syndrome)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with POTS (Postural Orthostatic Tachycardia Syndrome)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Florinef)
Type
Prescription Drug
How many have tried
37
Check to add this treatment to your profile
Treatment name(s)
Type
Prescription Drug
How many have tried
21
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
10
Tried for
Insomnia (5) Pain (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tenormin)
Type
Prescription Drug
How many have tried
10
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
8
Check to add this treatment to your profile
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
8
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
7
Tried for
Pain (7)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
7
Tried for
Pain (7)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
6
Check to add this treatment to your profile
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
6
Tried for
Depressed mood (4) Anxious mood (3)

Data from patients with POTS (Postural Orthostatic Tachycardia Syndrome), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with POTS (Postural Orthostatic Tachycardia Syndrome)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Florinef)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (13 evaluations)
Side effects
Migraine headaches Fatigue 5 more
How many evaluations
15
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (7 evaluations)
Side effects
Abdominal cramps Abdominal pain 4 more
How many evaluations
7
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (2 evaluations)
Side effects
How many evaluations
3
Tried for
Insomnia (5) Pain (5)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Tenormin)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (3 evaluations)
Side effects
Flu like symptoms
How many evaluations
3
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (2 evaluations)
Side effects
Nausea Nausea and vomiting
How many evaluations
2
Check to add this treatment to your profile
Treatment name(s)

(Inderal)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (5 evaluations)
Side effects
Depressed mood
How many evaluations
7
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Dizziness/walking like I'm drunk Drug Addiction 1 more
How many evaluations
1
Tried for
Pain (7)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
How many evaluations
1
Tried for
Pain (7)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (4 evaluations)
Side effects
Dry mouth Muscle stiffness
How many evaluations
4
Check to add this treatment to your profile
Treatment name(s)

(Lexapro)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Fatigue Nightmares 1 more
How many evaluations
2
Tried for
Depressed mood (4) Anxious mood (3)

Data from patients with POTS (Postural Orthostatic Tachycardia Syndrome), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has POTS (Postural Orthostatic Tachycardia Syndrome) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 49
20s 106
30s 93
40s 77
50s 46
60s 18
70+ 2

Gender

Distribution of females vs. males

91% Females
9% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 127
20-29 years 54
30-39 years 36
40-49 years 31
50-59 years 9
60-69 years 1
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 261
Not Diagnosed 49

These charts show data from POTS patients who have completed their condition history
Last updated: