POTS (Postural Orthostatic Tachycardia Syndrome)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is POTS (Postural Orthostatic Tachycardia Syndrome)?

Postural orthostatic tachycardia syndrome is a condition of orthostatic intolerance, in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia.

Common symptoms reported by people with POTS (Postural Orthostatic Tachycardia Syndrome)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with POTS (Postural Orthostatic Tachycardia Syndrome)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Florinef)
Type
Prescription Drug
How many have tried
38
Check to add this treatment to your profile
Treatment name(s)

(ProAmatine)
Type
Prescription Drug
How many have tried
16
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
15
Tried for
Pain (8) Insomnia (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
11
Check to add this treatment to your profile
Treatment name(s)

(Metoprolol Tartrate)
Type
Prescription Drug
How many have tried
10
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
9
Tried for
Pain (8) Insomnia (2)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
9
Tried for
Pain (9)
Check to add this treatment to your profile
Treatment name(s)

(Tenormin)
Type
Prescription Drug
How many have tried
8
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
8
Tried for
Pain (8)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
7

Data from patients with POTS (Postural Orthostatic Tachycardia Syndrome), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with POTS (Postural Orthostatic Tachycardia Syndrome)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Florinef)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (15 evaluations)
Side effects
Weight gain Abdominal cramps 10 more
Total evaluations
20
Check to add this treatment to your profile
Treatment name(s)

(ProAmatine)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (8 evaluations)
Side effects
Abdominal cramps Head pressure 4 more
Total evaluations
8
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (7 evaluations)
Side effects
Weight gain Acid reflux 3 more
Total evaluations
10
Tried for
Pain (8) Insomnia (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Inderal)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (6 evaluations)
Side effects
Hypotension Migraine 2 more
Total evaluations
6
Check to add this treatment to your profile
Treatment name(s)

(Metoprolol Tartrate)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (4 evaluations)
Side effects
Hypotension Cold chills 3 more
Total evaluations
4
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Constipation Excessive appetite 2 more
Total evaluations
4
Tried for
Pain (8) Insomnia (2)
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Nausea Constipation 3 more
Total evaluations
4
Tried for
Pain (9)
Check to add this treatment to your profile
Treatment name(s)

(Tenormin)
Perceived effectiveness
for POTS (Postural Orthostatic Tachycardia Syndrome) (3 evaluations)
Side effects
Total evaluations
3
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
Nausea Dizziness/walking like I'm drunk 1 more
Total evaluations
3
Tried for
Pain (8)
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Perceived effectiveness
for Fatigue (7 evaluations)
Side effects
Heart rate increased High Blood Pressure (Hypertension) 1 more
Total evaluations
7
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with POTS (Postural Orthostatic Tachycardia Syndrome), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has POTS (Postural Orthostatic Tachycardia Syndrome) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 45
20s 191
30s 178
40s 146
50s 82
60s 42
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 209
20-29 years 91
30-39 years 65
40-49 years 51
50-59 years 17
60-69 years 3
70+ years 0

Sex

Distribution of sex

93% Female
7% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 441
Not Diagnosed 71

These charts show data from POTS patients who have completed their condition history
Last updated: