Toxic maculopathy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is toxic maculopathy?

Toxic maculopathy is characterized by damage to the macula as the result of a medication, such as hydroxychloroquine. It is identified through an eye exam and can lead to retinopathy with vision changes.

Common symptoms reported by people with toxic maculopathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with toxic maculopathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with toxic maculopathy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with toxic maculopathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Mobic)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with toxic maculopathy, who reported starting treatments within the last 5 years.
Last updated:

Who has toxic maculopathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 2
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Sex

Distribution of sex

100% Female
0% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from toxic maculopathy patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have toxic maculopathy through your profile, those stories and data appear here too.

Got a question about living with toxic maculopathy? Members in the forum might have the answers.