Gastrointestinal neuroendocrine tumor

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What is gastrointestinal neuroendocrine tumor?

A neuroendocrine tumor is a type of tumor that affects cells of the neuroendocrine system, the system that makes and regulates hormones. These are rare tumors that most often originate in the gastrointestinal tract and lungs but may also occur in other locations such as the pancreas and thyroid.

Common symptoms reported by people with gastrointestinal neuroendocrine tumor

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with gastrointestinal neuroendocrine tumor

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sandostatin)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Somatuline Depot)
Type
Prescription Drug
How many have tried
2
Treatment name(s)
Type
Prescription Drug
How many have tried
1

Data from patients with gastrointestinal neuroendocrine tumor, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with gastrointestinal neuroendocrine tumor

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sandostatin)
Perceived effectiveness
for gastrointestinal neuroendocrine tumor (1 evaluation)
Side effects
fatigue
Total evaluations
3
Treatment name(s)

(Somatuline Depot)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)
Perceived effectiveness
for gastrointestinal neuroendocrine tumor (2 evaluations)
Side effects
neuropathy
Total evaluations
2
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with gastrointestinal neuroendocrine tumor, who reported starting treatments within the last 5 years.
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Who has gastrointestinal neuroendocrine tumor on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 4
30s 6
40s 18
50s 35
60s 27
70+ 21
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 2
30-39 years 0
40-49 years 8
50-59 years 7
60-69 years 1
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 28
Female 87

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 27
Not Diagnosed 1

These charts show data from gastrointestinal neuroendocrine tumor patients who have completed their condition history
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