Spinal cord injury

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is spinal cord injury?

Spinal cord injury may involve the spinal cord, vertebrae, or both that causes permanent and/or progressive interruption of impulse conduction.

Common symptoms reported by people with spinal cord injury

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with spinal cord injury

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
9
Tried for
spinal cord injury (9)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
8
Tried for
spinal cord injury (7) pain (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
6
Tried for
pain (5) spinal cord injury (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
spinal cord injury (2)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2) fatigue (1)
1 more
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
2
Tried for
pain (2)

Data from patients with spinal cord injury, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with spinal cord injury

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for spinal cord injury (2 evaluations)
Side effects
bone loss dizziness 1 more
Total evaluations
3
Tried for
spinal cord injury (9)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for spinal cord injury (3 evaluations)
Side effects
dizzy spells dry mouth
Total evaluations
5
Tried for
spinal cord injury (7) pain (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (3 evaluations)
Side effects
increased insomnia
Total evaluations
3
Tried for
pain (5) spinal cord injury (1)
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (13 evaluations)
Side effects
indigestion upset stomach
Total evaluations
13
Tried for
pain (3)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Elavil)
Perceived effectiveness
for spinal cord injury (1 evaluation)
Side effects
vertigo
Total evaluations
2
Tried for
spinal cord injury (2)
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2)
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
for pain (9 evaluations)
Side effects
excess mucus headaches in morning
Total evaluations
9
Tried for
pain (2) fatigue (1)
1 more
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with spinal cord injury, who reported starting treatments within the last 5 years.
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Who has spinal cord injury on PatientsLikeMe?


Age
Age Proportion # of patients
<20 13
20s 77
30s 194
40s 296
50s 409
60s 255
70+ 100

Distribution of sex

Sex
Sex Proportion # of patients
Male 719
Female 660

These charts show data from spinal cord injury patients who have completed their condition history
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