Myalgic encephalomyelitis/chronic fatigue syndrome

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What is myalgic encephalomyelitis/chronic fatigue syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with myalgic encephalomyelitis/chronic fatigue syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with myalgic encephalomyelitis/chronic fatigue syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
98
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
77
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
45
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
45
Tried for
pain (39) muscle pain (20)
1 more
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
31
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
30
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
27
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
26
Tried for
pain (26) headaches (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
24
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
23
Tried for
depressed mood (22) pain (2)

Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with myalgic encephalomyelitis/chronic fatigue syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lyrica)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (32 evaluations)
Side effects
weight gain brain fog 46 more
Total evaluations
47
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (20 evaluations)
Side effects
weight gain dizziness 81 more
Total evaluations
66
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (36 evaluations)
Side effects
sleepiness drowsiness 23 more
Total evaluations
38
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (20 evaluations)
Side effects
itching chronic constipation 8 more
Total evaluations
21
Tried for
pain (39) muscle pain (20)
1 more
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (10 evaluations)
Side effects
brain fog drowsiness 4 more
Total evaluations
14
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (38 evaluations)
Side effects
weight gain constipation 20 more
Total evaluations
40
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for fatigue (16 evaluations)
Side effects
headaches vivid dreams 10 more
Total evaluations
28
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (10 evaluations)
Side effects
blurry vision deep itching 4 more
Total evaluations
10
Tried for
pain (26) headaches (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (10 evaluations)
Side effects
dry mouth energy crashes 11 more
Total evaluations
13
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (14 evaluations)
Side effects
anxious mood dizziness 25 more
Total evaluations
15
Tried for
depressed mood (22) pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who reported starting treatments within the last 5 years.
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Who has myalgic encephalomyelitis/chronic fatigue syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 37
20s 501
30s 1642
40s 3647
50s 4380
60s 2941
70+ 717
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1087
20-29 years 1463
30-39 years 1812
40-49 years 1412
50-59 years 500
60-69 years 65
70+ years 9

Distribution of sex

Sex
Sex Proportion # of patients
Male 1338
Female 12584

Types
Condition Types Proportion # of patients
Chronic fatigue immune dysfunction syndrome (CFIDS) 599
Chronic fatigue syndrome (CFS) 1850
Myalgic encephalomyelitis (ME) 925
Neuroendocrine immune disorder 157
Post-viral fatigue syndrome (PVFS) 320
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8336
Not Diagnosed 3847

These charts show data from ME/CFS patients who have completed their condition history
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