Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
248
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
226
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
125
Tried for
Pain (109) Muscle pain (59)
2 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
107
Tried for
Insomnia (76) Pain (67)
5 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
85
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
78
Tried for
Pain (76) Muscle pain (2)
2 more
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
61
Tried for
Anxious mood (51) Insomnia (6)
4 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
48
Tried for
Insomnia (41) Depressed mood (4)
4 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
45
Tried for
Pain (36) Unrefreshing or poor sleep (3)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Type
Prescription Drug
How many have tried
41
Tried for
Insomnia (41) Pain (1)
1 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (83 evaluations)
Side effects
Weight gain Dizziness 117 more
How many evaluations
123
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (70 evaluations)
Side effects
Nausea Dizziness 93 more
How many evaluations
128
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (41 evaluations)
Side effects
Dizziness Drowsiness 28 more
How many evaluations
49
Tried for
Pain (109) Muscle pain (59)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (69 evaluations)
Side effects
Dry mouth Drowsiness 36 more
How many evaluations
84
Tried for
Insomnia (76) Pain (67)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (48 evaluations)
Side effects
Weight gain Dizziness 42 more
How many evaluations
61
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (22 evaluations)
Side effects
Drowsiness Constipation 11 more
How many evaluations
26
Tried for
Pain (76) Muscle pain (2)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (17 evaluations)
Side effects
Drowsiness Loss of balance 12 more
How many evaluations
22
Tried for
Anxious mood (51) Insomnia (6)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (20 evaluations)
Side effects
Affects memory Drowsy in a.m. 7 more
How many evaluations
23
Tried for
Insomnia (41) Depressed mood (4)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (15 evaluations)
Side effects
Drowsiness Blurry vision 15 more
How many evaluations
19
Tried for
Pain (36) Unrefreshing or poor sleep (3)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Perceived effectiveness
for Insomnia (35 evaluations)
Side effects
Diarrhea Memory problems 25 more
How many evaluations
35
Tried for
Insomnia (41) Pain (1)
1 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 68
20s 556
30s 1,638
40s 3,254
50s 3,536
60s 1,896
70+ 319

Sex

Distribution of sex

90% Female
10% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 929
20-29 years 1,192
30-39 years 1,396
40-49 years 1,097
50-59 years 385
60-69 years 42
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 416
Chronic Fatigue Syndrome (CFS) 1,315
Myalgic Encephalomyelitis (ME) 692
Neuroendocrine Immune Disorder 116
Post-Viral Fatigue Syndrome (PVFS) 224
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,428
Not Diagnosed 3,810

These charts show data from ME/CFS patients who have completed their condition history
Last updated: