Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
242
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
220
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
123
Tried for
Pain (107) Muscle pain (59)
2 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
106
Tried for
Insomnia (75) Pain (67)
5 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
85
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
76
Tried for
Pain (74) Muscle pain (2)
2 more
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
58
Tried for
Anxious mood (50) Insomnia (5)
4 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
48
Tried for
Insomnia (41) Depressed mood (4)
4 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
44
Tried for
Pain (36) Unrefreshing or poor sleep (3)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Percocet 5/325)
Type
Prescription Drug
How many have tried
40
Tried for
Pain (40)

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (78 evaluations)
Side effects
Weight gain Dizziness 111 more
How many evaluations
115
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (67 evaluations)
Side effects
Nausea Dizziness 89 more
How many evaluations
121
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (40 evaluations)
Side effects
Dizziness Drowsiness 24 more
How many evaluations
48
Tried for
Pain (107) Muscle pain (59)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (69 evaluations)
Side effects
Drowsiness Dry mouth 37 more
How many evaluations
84
Tried for
Insomnia (75) Pain (67)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (49 evaluations)
Side effects
Weight gain Dizziness 42 more
How many evaluations
62
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (20 evaluations)
Side effects
Drowsiness Constipation 10 more
How many evaluations
24
Tried for
Pain (74) Muscle pain (2)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (18 evaluations)
Side effects
Drowsiness Loss of balance 12 more
How many evaluations
23
Tried for
Anxious mood (50) Insomnia (5)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (20 evaluations)
Side effects
Affects memory Drowsy in a.m. 7 more
How many evaluations
21
Tried for
Insomnia (41) Depressed mood (4)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (15 evaluations)
Side effects
Drowsiness Blurry vision 15 more
How many evaluations
19
Tried for
Pain (36) Unrefreshing or poor sleep (3)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Percocet 5/325)
Perceived effectiveness
for Pain (19 evaluations)
Side effects
Drowsiness Addiction 10 more
How many evaluations
19
Tried for
Pain (40)

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 68
20s 553
30s 1,632
40s 3,252
50s 3,548
60s 1,907
70+ 325

Sex

Distribution of sex

90% Female
10% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 930
20-29 years 1,192
30-39 years 1,402
40-49 years 1,099
50-59 years 387
60-69 years 41
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 419
Chronic Fatigue Syndrome (CFS) 1,329
Myalgic Encephalomyelitis (ME) 692
Neuroendocrine Immune Disorder 117
Post-Viral Fatigue Syndrome (PVFS) 225
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,438
Not Diagnosed 3,811

These charts show data from ME/CFS patients who have completed their condition history
Last updated: