Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Chronic Fatigue Syndrome which may also be known as Myalgic Encephalomyelitis (ME) is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
307
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
292
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
156
Tried for
Pain (137) Muscle pain (62)
2 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
118
Tried for
Insomnia (81) Pain (69)
5 more
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
104
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
96
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
73
Tried for
Anxious mood (54) Insomnia (11)
4 more
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Treatment name(s)

(Ambien)
Type
Prescription Drug
How many have tried
61
Tried for
Insomnia (58) Unrefreshing or poor sleep (3)
4 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
56
Tried for
Insomnia (45) Depressed mood (5)
4 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
53
Tried for
Pain (41) Insomnia (4)
5 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (93 evaluations)
Side effects
Weight gain Dizziness 133 more
How many evaluations
178
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (62 evaluations)
Side effects
Nausea Weight gain 96 more
How many evaluations
150
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (66 evaluations)
Side effects
Constipation Dizziness 38 more
How many evaluations
76
Tried for
Pain (137) Muscle pain (62)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (65 evaluations)
Side effects
Dry mouth Drowsiness 36 more
How many evaluations
82
Tried for
Insomnia (81) Pain (69)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (33 evaluations)
Side effects
Constipation Drowsiness 14 more
How many evaluations
37
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (49 evaluations)
Side effects
Dizziness Weight gain 46 more
How many evaluations
63
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (19 evaluations)
Side effects
Drowsy in a.m. Borderline Personality Disorder 13 more
How many evaluations
34
Tried for
Anxious mood (54) Insomnia (11)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Perceived effectiveness
for Insomnia (46 evaluations)
Side effects
Diarrhea Grogginess 24 more
How many evaluations
46
Tried for
Insomnia (58) Unrefreshing or poor sleep (3)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (23 evaluations)
Side effects
dizziness like jet lag, vagueness in head with increasing intensity. Dry mouth 6 more
How many evaluations
27
Tried for
Insomnia (45) Depressed mood (5)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (16 evaluations)
Side effects
Drowsiness Blurry vision 16 more
How many evaluations
20
Tried for
Pain (41) Insomnia (4)
5 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 64
20s 554
30s 1,665
40s 3,234
50s 3,422
60s 1,722
70+ 287

Sex

Distribution of sex

91% Female
9% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 868
20-29 years 1,135
30-39 years 1,335
40-49 years 1,058
50-59 years 372
60-69 years 38
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 336
Chronic Fatigue Syndrome (CFS) 1,023
Myalgic Encephalomyelitis (ME) 596
Neuroendocrine Immune Disorder 98
Post-Viral Fatigue Syndrome (PVFS) 188
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,223
Not Diagnosed 3,766

These charts show data from ME/CFS patients who have completed their condition history
Last updated: