Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
255
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
240
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
130
Tried for
Pain (116) Muscle pain (58)
2 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
114
Tried for
Insomnia (79) Pain (70)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
88
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
86
Tried for
Pain (84) Muscle pain (2)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
64
Tried for
Anxious mood (52) Insomnia (7)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
50
Tried for
Pain (40) Insomnia (3)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
49
Tried for
Insomnia (41) Depressed mood (5)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Type
Prescription Drug
How many have tried
44

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (84 evaluations)
Side effects
Weight gain Dizziness 116 more
How many evaluations
126
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (65 evaluations)
Side effects
Nausea Weight gain 90 more
How many evaluations
122
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (47 evaluations)
Side effects
Constipation Dizziness 36 more
How many evaluations
55
Tried for
Pain (116) Muscle pain (58)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (68 evaluations)
Side effects
Dry mouth Drowsiness 37 more
How many evaluations
85
Tried for
Insomnia (79) Pain (70)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (50 evaluations)
Side effects
Weight gain Dizziness 47 more
How many evaluations
63
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (27 evaluations)
Side effects
Drowsiness Dry mouth 12 more
How many evaluations
31
Tried for
Pain (84) Muscle pain (2)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (17 evaluations)
Side effects
Borderline Personality Disorder Constant brain fog 13 more
How many evaluations
23
Tried for
Anxious mood (52) Insomnia (7)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (16 evaluations)
Side effects
Drowsiness Blurry vision 16 more
How many evaluations
20
Tried for
Pain (40) Insomnia (3)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (21 evaluations)
Side effects
Affects memory Drowsy in a.m. 6 more
How many evaluations
24
Tried for
Insomnia (41) Depressed mood (5)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Perceived effectiveness
for Insomnia (34 evaluations)
Side effects
Diarrhea Memory problems 23 more
How many evaluations
34

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 67
20s 554
30s 1,642
40s 3,232
50s 3,503
60s 1,837
70+ 314

Sex

Distribution of sex

90% Female
10% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 910
20-29 years 1,165
30-39 years 1,381
40-49 years 1,078
50-59 years 379
60-69 years 42
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 394
Chronic Fatigue Syndrome (CFS) 1,210
Myalgic Encephalomyelitis (ME) 660
Neuroendocrine Immune Disorder 110
Post-Viral Fatigue Syndrome (PVFS) 214
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,350
Not Diagnosed 3,790

These charts show data from ME/CFS patients who have completed their condition history
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