Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
171
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
152
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
91
Tried for
Insomnia (62) Pain (60)
4 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
84
Tried for
Pain (74) Muscle pain (36)
1 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
71
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Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
47
Tried for
Pain (47) Headaches (1)
2 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
41
Tried for
Insomnia (36) Depressed mood (4)
3 more
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
38
Tried for
Anxious mood (36) Insomnia (3)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
34
Tried for
Depressed mood (31) Pain (3)
3 more
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Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
31
Tried for
Pain (31) Headaches (1)

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (68 evaluations)
Side effects
Dizziness Weight gain 101 more
Total evaluations
94
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (71 evaluations)
Side effects
Nausea Weight gain 83 more
Total evaluations
125
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (70 evaluations)
Side effects
Dry mouth Drowsiness 34 more
Total evaluations
86
Tried for
Insomnia (62) Pain (60)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (33 evaluations)
Side effects
Dizziness Fatigue 18 more
Total evaluations
40
Tried for
Pain (74) Muscle pain (36)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (44 evaluations)
Side effects
Weight gain Problems concentrating 34 more
Total evaluations
53
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (15 evaluations)
Side effects
Nausea Abdominal bloating 12 more
Total evaluations
17
Tried for
Pain (47) Headaches (1)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (13 evaluations)
Side effects
Affects memory Anxious mood 4 more
Total evaluations
15
Tried for
Insomnia (36) Depressed mood (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (11 evaluations)
Side effects
Loss of balance Apathy 7 more
Total evaluations
15
Tried for
Anxious mood (36) Insomnia (3)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for Depressed mood (19 evaluations)
Side effects
Dizziness Dry mouth 22 more
Total evaluations
22
Tried for
Depressed mood (31) Pain (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Percocet)
Perceived effectiveness
for Pain (10 evaluations)
Side effects
Drowsiness Constipation 5 more
Total evaluations
10
Tried for
Pain (31) Headaches (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 52
20s 529
30s 1,563
40s 3,265
50s 3,753
60s 2,229
70+ 450
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 964
20-29 years 1,245
30-39 years 1,474
40-49 years 1,156
50-59 years 404
60-69 years 46
70+ years 7

Sex

Distribution of sex

90% Female
10% Male

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 510
Chronic Fatigue Syndrome (CFS) 1,604
Myalgic Encephalomyelitis (ME) 803
Neuroendocrine Immune Disorder 141
Post-Viral Fatigue Syndrome (PVFS) 281
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,666
Not Diagnosed 3,839

These charts show data from ME/CFS patients who have completed their condition history
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