Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
199
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
186
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
103
Tried for
Pain (90) Muscle pain (49)
2 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
99
Tried for
Insomnia (69) Pain (64)
4 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
78
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
57
Tried for
Pain (56) Muscle pain (2)
1 more
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
45
Tried for
Anxious mood (41) Unrefreshing or poor sleep (4)
3 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
43
Tried for
Insomnia (37) Depressed mood (4)
4 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
36
Tried for
Pain (30) Muscle pain (3)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
36

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (68 evaluations)
Side effects
Weight gain Dizziness 102 more
How many evaluations
96
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (67 evaluations)
Side effects
Nausea Dizziness 87 more
How many evaluations
119
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (35 evaluations)
Side effects
Dizziness Constipation 20 more
How many evaluations
42
Tried for
Pain (90) Muscle pain (49)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (70 evaluations)
Side effects
Drowsiness Dry mouth 36 more
How many evaluations
84
Tried for
Insomnia (69) Pain (64)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (51 evaluations)
Side effects
Weight gain Dizziness 46 more
How many evaluations
62
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (19 evaluations)
Side effects
Constipation Dehydration 10 more
How many evaluations
21
Tried for
Pain (56) Muscle pain (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (14 evaluations)
Side effects
Drowsiness Loss of balance 9 more
How many evaluations
19
Tried for
Anxious mood (41) Unrefreshing or poor sleep (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (19 evaluations)
Side effects
Affects memory Anxious mood 8 more
How many evaluations
21
Tried for
Insomnia (37) Depressed mood (4)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (12 evaluations)
Side effects
Drowsiness Blurry vision 10 more
How many evaluations
14
Tried for
Pain (30) Muscle pain (3)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for Fatigue (13 evaluations)
Side effects
Headaches Dry mouth 14 more
How many evaluations
29

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 60
20s 533
30s 1,599
40s 3,206
50s 3,598
60s 2,009
70+ 375

Sex

Distribution of sex

90% Female
10% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 936
20-29 years 1,215
30-39 years 1,418
40-49 years 1,108
50-59 years 385
60-69 years 42
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 444
Chronic Fatigue Syndrome (CFS) 1,395
Myalgic Encephalomyelitis (ME) 726
Neuroendocrine Immune Disorder 127
Post-Viral Fatigue Syndrome (PVFS) 245
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,495
Not Diagnosed 3,814

These charts show data from ME/CFS patients who have completed their condition history
Last updated: