Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
179
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
159
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
96
Tried for
Insomnia (65) Pain (63)
4 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
88
Tried for
Pain (77) Muscle pain (39)
1 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
71
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
46
Tried for
Pain (46) Headaches (1)
2 more
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
39
Tried for
Anxious mood (37) Insomnia (2)
2 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
39
Tried for
Insomnia (34) Depressed mood (4)
3 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
32
Tried for
Pain (27) Muscle pain (3)
3 more
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Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
31

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (67 evaluations)
Side effects
Weight gain Dizziness 101 more
How many evaluations
95
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (69 evaluations)
Side effects
Nausea Dizziness 79 more
How many evaluations
119
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (68 evaluations)
Side effects
Drowsiness Dry mouth 36 more
How many evaluations
86
Tried for
Insomnia (65) Pain (63)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (31 evaluations)
Side effects
Dizziness Fatigue 19 more
How many evaluations
37
Tried for
Pain (77) Muscle pain (39)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (48 evaluations)
Side effects
Weight gain Dizziness 44 more
How many evaluations
57
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (12 evaluations)
Side effects
Depressed mood Dizziness/walking like I'm drunk 5 more
How many evaluations
14
Tried for
Pain (46) Headaches (1)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (12 evaluations)
Side effects
Loss of balance Apathy 5 more
How many evaluations
14
Tried for
Anxious mood (37) Insomnia (2)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (18 evaluations)
Side effects
Affects memory Anxious mood 5 more
How many evaluations
20
Tried for
Insomnia (34) Depressed mood (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (11 evaluations)
Side effects
Drowsiness Blurry vision 8 more
How many evaluations
12
Tried for
Pain (27) Muscle pain (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for Fatigue (13 evaluations)
Side effects
Dry mouth Headaches 11 more
How many evaluations
28

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 51
20s 530
30s 1,561
40s 3,195
50s 3,622
60s 2,102
70+ 415

Sex

Distribution of sex

90% Female
10% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 945
20-29 years 1,221
30-39 years 1,422
40-49 years 1,119
50-59 years 387
60-69 years 43
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 470
Chronic Fatigue Syndrome (CFS) 1,459
Myalgic Encephalomyelitis (ME) 755
Neuroendocrine Immune Disorder 133
Post-Viral Fatigue Syndrome (PVFS) 258
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,534
Not Diagnosed 3,823

These charts show data from ME/CFS patients who have completed their condition history
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