Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
187
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
173
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
99
Tried for
Insomnia (69) Pain (65)
4 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
96
Tried for
Pain (84) Muscle pain (45)
2 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
77
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
48
Tried for
Pain (48) Muscle pain (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
43
Tried for
Anxious mood (39) Unrefreshing or poor sleep (4)
3 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
41
Tried for
Insomnia (35) Depressed mood (4)
4 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
35
Tried for
Pain (29) Muscle pain (3)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
35

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (65 evaluations)
Side effects
Weight gain Dizziness 103 more
How many evaluations
94
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (67 evaluations)
Side effects
Nausea Dizziness 86 more
How many evaluations
118
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (70 evaluations)
Side effects
Drowsiness Dry mouth 36 more
How many evaluations
87
Tried for
Insomnia (69) Pain (65)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (33 evaluations)
Side effects
Dizziness Fatigue 19 more
How many evaluations
39
Tried for
Pain (84) Muscle pain (45)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (52 evaluations)
Side effects
Weight gain Dizziness 46 more
How many evaluations
61
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (16 evaluations)
Side effects
Depressed mood Dizziness/walking like I'm drunk 7 more
How many evaluations
18
Tried for
Pain (48) Muscle pain (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (13 evaluations)
Side effects
Drowsiness Loss of balance 9 more
How many evaluations
18
Tried for
Anxious mood (39) Unrefreshing or poor sleep (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (18 evaluations)
Side effects
Affects memory Anxious mood 5 more
How many evaluations
20
Tried for
Insomnia (35) Depressed mood (4)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (12 evaluations)
Side effects
Drowsiness Blurry vision 10 more
How many evaluations
14
Tried for
Pain (29) Muscle pain (3)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for Fatigue (13 evaluations)
Side effects
Headaches Dry mouth 14 more
How many evaluations
29

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 57
20s 529
30s 1,580
40s 3,192
50s 3,616
60s 2,060
70+ 395

Sex

Distribution of sex

90% Female
10% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 941
20-29 years 1,218
30-39 years 1,421
40-49 years 1,112
50-59 years 385
60-69 years 43
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 458
Chronic Fatigue Syndrome (CFS) 1,431
Myalgic Encephalomyelitis (ME) 741
Neuroendocrine Immune Disorder 131
Post-Viral Fatigue Syndrome (PVFS) 253
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,513
Not Diagnosed 3,820

These charts show data from ME/CFS patients who have completed their condition history
Last updated: