Myalgic encephalomyelitis/chronic fatigue syndrome

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What is myalgic encephalomyelitis/chronic fatigue syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with myalgic encephalomyelitis/chronic fatigue syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with myalgic encephalomyelitis/chronic fatigue syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
169
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
146
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
88
Tried for
Insomnia (59) Pain (58)
4 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
86
Tried for
Pain (76) Muscle pain (35)
1 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
70
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Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
43
Tried for
Pain (43) Headaches (1)
2 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
38
Tried for
Insomnia (34) Depressed mood (3)
3 more
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
36
Tried for
Anxious mood (34) Insomnia (3)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
32
Tried for
Depressed mood (29) Pain (3)
3 more
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Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
31
Tried for
Pain (31) Headaches (1)

Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with myalgic encephalomyelitis/chronic fatigue syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (64 evaluations)
Side effects
Weight gain Dizziness 98 more
Total evaluations
90
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (68 evaluations)
Side effects
Nausea Weight gain 88 more
Total evaluations
123
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (72 evaluations)
Side effects
Dry mouth Drowsiness 34 more
Total evaluations
89
Tried for
Insomnia (59) Pain (58)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (33 evaluations)
Side effects
Dizziness Fatigue 18 more
Total evaluations
40
Tried for
Pain (76) Muscle pain (35)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (45 evaluations)
Side effects
Weight gain Problems concentrating 35 more
Total evaluations
54
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (15 evaluations)
Side effects
Nausea Abdominal bloating 12 more
Total evaluations
16
Tried for
Pain (43) Headaches (1)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (11 evaluations)
Side effects
Affects memory Anxious mood 4 more
Total evaluations
13
Tried for
Insomnia (34) Depressed mood (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (11 evaluations)
Side effects
Loss of balance Apathy 7 more
Total evaluations
15
Tried for
Anxious mood (34) Insomnia (3)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for Depressed mood (19 evaluations)
Side effects
Anxious mood Dizziness 28 more
Total evaluations
23
Tried for
Depressed mood (29) Pain (3)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Percocet)
Perceived effectiveness
for Pain (10 evaluations)
Side effects
Drowsiness Constipation 5 more
Total evaluations
10
Tried for
Pain (31) Headaches (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has myalgic encephalomyelitis/chronic fatigue syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 49
20s 522
30s 1,563
40s 3,269
50s 3,776
60s 2,269
70+ 467
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 966
20-29 years 1,251
30-39 years 1,478
40-49 years 1,162
50-59 years 407
60-69 years 46
70+ years 7

Sex

Distribution of sex

90% Female
10% Male

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 518
Chronic Fatigue Syndrome (CFS) 1,623
Myalgic Encephalomyelitis (ME) 815
Neuroendocrine Immune Disorder 143
Post-Viral Fatigue Syndrome (PVFS) 290
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,682
Not Diagnosed 3,840

These charts show data from ME/CFS patients who have completed their condition history
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