Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
205
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
189
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
106
Tried for
Pain (92) Muscle pain (51)
2 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
98
Tried for
Insomnia (69) Pain (62)
4 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
80
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
57
Tried for
Pain (56) Muscle pain (2)
1 more
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
44
Tried for
Anxious mood (40) Unrefreshing or poor sleep (4)
3 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
43
Tried for
Insomnia (37) Depressed mood (4)
4 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
38
Tried for
Pain (33) Muscle pain (2)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Percocet 5/325)
Type
Prescription Drug
How many have tried
37
Tried for
Pain (37)

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (69 evaluations)
Side effects
Weight gain Dizziness 102 more
How many evaluations
98
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (67 evaluations)
Side effects
Nausea Dizziness 86 more
How many evaluations
117
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (36 evaluations)
Side effects
Dizziness Constipation 21 more
How many evaluations
43
Tried for
Pain (92) Muscle pain (51)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (69 evaluations)
Side effects
Drowsiness Dry mouth 37 more
How many evaluations
83
Tried for
Insomnia (69) Pain (62)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (52 evaluations)
Side effects
Weight gain Dizziness 46 more
How many evaluations
63
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (19 evaluations)
Side effects
Constipation Dehydration 10 more
How many evaluations
21
Tried for
Pain (56) Muscle pain (2)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (14 evaluations)
Side effects
Drowsiness Loss of balance 9 more
How many evaluations
18
Tried for
Anxious mood (40) Unrefreshing or poor sleep (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (18 evaluations)
Side effects
Affects memory Drowsy in a.m. 7 more
How many evaluations
19
Tried for
Insomnia (37) Depressed mood (4)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (12 evaluations)
Side effects
Drowsiness Blurry vision 10 more
How many evaluations
13
Tried for
Pain (33) Muscle pain (2)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Percocet 5/325)
Perceived effectiveness
for Pain (17 evaluations)
Side effects
Drowsiness Addiction 8 more
How many evaluations
17
Tried for
Pain (37)

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 59
20s 537
30s 1,590
40s 3,214
50s 3,587
60s 2,001
70+ 371

Sex

Distribution of sex

90% Female
10% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 934
20-29 years 1,206
30-39 years 1,412
40-49 years 1,109
50-59 years 388
60-69 years 42
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 437
Chronic Fatigue Syndrome (CFS) 1,380
Myalgic Encephalomyelitis (ME) 717
Neuroendocrine Immune Disorder 124
Post-Viral Fatigue Syndrome (PVFS) 239
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,482
Not Diagnosed 3,815

These charts show data from ME/CFS patients who have completed their condition history
Last updated: