Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
296
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Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
283
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
152
Tried for
Pain (133) Muscle pain (62)
2 more
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
116
Tried for
Insomnia (80) Pain (69)
5 more
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Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
98
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
92
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
71
Tried for
Anxious mood (53) Insomnia (11)
4 more
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Treatment name(s)

(Ambien)
Type
Prescription Drug
How many have tried
58
Tried for
Insomnia (55) Unrefreshing or poor sleep (3)
4 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
53
Tried for
Insomnia (42) Depressed mood (5)
4 more
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
52
Tried for
Pain (41) Insomnia (4)
5 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (94 evaluations)
Side effects
Weight gain Dizziness 129 more
How many evaluations
169
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (62 evaluations)
Side effects
Nausea Weight gain 97 more
How many evaluations
147
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (60 evaluations)
Side effects
Constipation Dizziness 38 more
How many evaluations
70
Tried for
Pain (133) Muscle pain (62)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (66 evaluations)
Side effects
Dry mouth Drowsiness 36 more
How many evaluations
83
Tried for
Insomnia (80) Pain (69)
5 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (31 evaluations)
Side effects
Constipation Drowsiness 14 more
How many evaluations
35
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (51 evaluations)
Side effects
Weight gain Dizziness 47 more
How many evaluations
65
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (19 evaluations)
Side effects
Drowsy in a.m. Borderline Personality Disorder 13 more
How many evaluations
33
Tried for
Anxious mood (53) Insomnia (11)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ambien)
Perceived effectiveness
for Insomnia (44 evaluations)
Side effects
Diarrhea Grogginess 24 more
How many evaluations
44
Tried for
Insomnia (55) Unrefreshing or poor sleep (3)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (20 evaluations)
Side effects
Dry mouth Excessive daytime sleepiness (somnolence) 4 more
How many evaluations
24
Tried for
Insomnia (42) Depressed mood (5)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
for Pain (16 evaluations)
Side effects
Drowsiness Blurry vision 16 more
How many evaluations
20
Tried for
Pain (41) Insomnia (4)
5 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 62
20s 558
30s 1,654
40s 3,233
50s 3,438
60s 1,743
70+ 291

Sex

Distribution of sex

91% Female
9% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 876
20-29 years 1,138
30-39 years 1,337
40-49 years 1,063
50-59 years 373
60-69 years 39
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 345
Chronic Fatigue Syndrome (CFS) 1,048
Myalgic Encephalomyelitis (ME) 607
Neuroendocrine Immune Disorder 100
Post-Viral Fatigue Syndrome (PVFS) 193
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,239
Not Diagnosed 3,770

These charts show data from ME/CFS patients who have completed their condition history
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