Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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What is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
173
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
156
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
91
Tried for
Insomnia (62) Pain (60)
4 more
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Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
87
Tried for
Pain (76) Muscle pain (38)
1 more
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Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
72
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
45
Tried for
Pain (45) Headaches (1)
2 more
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Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
39
Tried for
Insomnia (34) Depressed mood (4)
3 more
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Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
37
Tried for
Anxious mood (35) Insomnia (2)
2 more
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Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
32
Tried for
Pain (32) Headaches (1)
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
31
Tried for
Depressed mood (29) Anxious mood (1)
3 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (66 evaluations)
Side effects
Weight gain Dizziness 100 more
How many evaluations
92
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (70 evaluations)
Side effects
Nausea Dizziness 78 more
How many evaluations
123
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (70 evaluations)
Side effects
Drowsiness Dry mouth 34 more
How many evaluations
88
Tried for
Insomnia (62) Pain (60)
4 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (32 evaluations)
Side effects
Dizziness Fatigue 18 more
How many evaluations
38
Tried for
Pain (76) Muscle pain (38)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (47 evaluations)
Side effects
Weight gain Problems concentrating 42 more
How many evaluations
56
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (13 evaluations)
Side effects
Nausea Abdominal bloating 10 more
How many evaluations
15
Tried for
Pain (45) Headaches (1)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (18 evaluations)
Side effects
Affects memory Anxious mood 5 more
How many evaluations
20
Tried for
Insomnia (34) Depressed mood (4)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (11 evaluations)
Side effects
Loss of balance Apathy 5 more
How many evaluations
13
Tried for
Anxious mood (35) Insomnia (2)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Percocet)
Perceived effectiveness
for Pain (9 evaluations)
Side effects
Drowsiness Constipation 3 more
How many evaluations
9
Tried for
Pain (32) Headaches (1)
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for Depressed mood (19 evaluations)
Side effects
Dizziness Dry mouth 23 more
How many evaluations
22
Tried for
Depressed mood (29) Anxious mood (1)
3 more

Data from patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 52
20s 524
30s 1,566
40s 3,214
50s 3,695
60s 2,159
70+ 430

Sex

Distribution of sex

90% Female
10% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 956
20-29 years 1,233
30-39 years 1,451
40-49 years 1,138
50-59 years 399
60-69 years 44
70+ years 6

Types
Condition Types Proportion # of patients
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) 489
Chronic Fatigue Syndrome (CFS) 1,535
Myalgic Encephalomyelitis (ME) 772
Neuroendocrine Immune Disorder 134
Post-Viral Fatigue Syndrome (PVFS) 267
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6,609
Not Diagnosed 3,832

These charts show data from ME/CFS patients who have completed their condition history
Last updated: