Huntington's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is Huntington's disease?

Huntington disease, an autosomal dominant disorder, is a progressive, neurodegenerative disease characterized by insidious onset of incoordination, personality changes, and psychiatric symptoms leading to severe dementia and immobility.

Common symptoms reported by people with Huntington's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Huntington's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Xenazine)
Type
Prescription Drug
How many have tried
4
Tried for
Huntington's disease (4)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
2
Tried for
Huntington's disease (2)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2) depressed mood (2)
Treatment name(s)

(Remeron)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
chorea movements (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
Huntington's disease (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Namenda)
Type
Prescription Drug
How many have tried
1
Tried for
cognitive impairment (1)

Data from patients with Huntington's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Huntington's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Xenazine)
Perceived effectiveness
for Huntington's disease (2 evaluations)
Side effects
Total evaluations
2
Tried for
Huntington's disease (4)
Treatment name(s)

(Celexa)
Perceived effectiveness
for Huntington's disease (1 evaluation)
Side effects
depressed mood
Total evaluations
1
Tried for
Huntington's disease (2)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood (2) depressed mood (2)
Treatment name(s)

(Remeron)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
weight gain
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Abilify)
Perceived effectiveness
for chorea movements (1 evaluation)
Side effects
Total evaluations
1
Tried for
chorea movements (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Huntington's disease (2 evaluations)
Side effects
sleepiness
Total evaluations
2
Tried for
Huntington's disease (1)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
dizziness heart palpitations
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Namenda)
Perceived effectiveness
for cognitive impairment (1 evaluation)
Side effects
Total evaluations
1
Tried for
cognitive impairment (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Huntington's disease, who reported starting treatments within the last 5 years.
Last updated:

Who has Huntington's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 7
20s 66
30s 201
40s 279
50s 227
60s 151
70+ 41
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 13
20-29 years 30
30-39 years 51
40-49 years 36
50-59 years 11
60-69 years 9
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 294
Female 682

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 198
Not Diagnosed 30

These charts show data from Huntington's disease patients who have completed their condition history
Last updated: