Duchenne muscular dystrophy

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What is Duchenne muscular dystrophy?

Muscular dystrophies are a group of genetic conditions characterized by progressive muscle weakness and wasting (atrophy). The Duchenne type is the most prevalent type of muscular dystrophy primarily affecting the skeletal muscles, which are used for movement, and the muscles of the heart.

Common symptoms reported by people with Duchenne muscular dystrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Duchenne muscular dystrophy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)

Data from patients with Duchenne muscular dystrophy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Duchenne muscular dystrophy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Marijuana)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood (1) depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Duchenne muscular dystrophy, who reported starting treatments within the last 5 years.
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Who has Duchenne muscular dystrophy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 13
20s 10
30s 11
40s 10
50s 2
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 41
Female 7

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12
Not Diagnosed 4

These charts show data from Duchenne muscular dystrophy patients who have completed their condition history
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