Mast cell activation syndrome

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What is mast cell activation syndrome?

Mast cell activation syndrome (MCAS) is a disorder characterized by episodes of symptoms related to hyper-reactivity of mast cells. Symptoms vary but may include hot flushing, stomach pain or nausea, lightheadness, heart palpitations, and more. Treatment for MCAS is not well established.

Common symptoms reported by people with mast cell activation syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for mast cell activation syndrome

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Compare treatments taken by people with mast cell activation syndrome

Let’s build this page together! When you share what it’s like to have mast cell activation syndrome through your profile, those stories and data appear here too.

Got a question about living with mast cell activation syndrome? Members in the forum might have the answers.

Who has mast cell activation syndrome on PatientsLikeMe?

  • 3 new patients joined this month
  • 135 say mast cell activation syndrome is their primary condition

Age
Age Proportion # of patients
<20 5
20s 38
30s 54
40s 61
50s 57
60s 32
70+ 8
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 33
20-29 years 12
30-39 years 18
40-49 years 8
50-59 years 5
60-69 years 0
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 31
Female 234

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 83
Not Diagnosed 23

These charts show data from mast cell activation syndrome patients who have completed their condition history
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