Treacher Collins syndrome

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What is Treacher Collins syndrome?

Treacher Collins syndrome is a condition that affects the development of facial bones and tissue.

Common symptoms reported by people with Treacher Collins syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Treacher Collins syndrome

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Compare treatments taken by people with Treacher Collins syndrome

Let’s build this page together! When you share what it’s like to have Treacher Collins syndrome through your profile, those stories and data appear here too.

Got a question about living with Treacher Collins syndrome? Members in the forum might have the answers.

Who has Treacher Collins syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 1
40s 1
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 1

These charts show data from Treacher Collins syndrome patients who have completed their condition history
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Let’s build this page together! When you share what it’s like to have Treacher Collins syndrome through your profile, those stories and data appear here too.

Got a question about living with Treacher Collins syndrome? Members in the forum might have the answers.