Cutaneous T-cell lymphoma

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What is cutaneous T-cell lymphoma?

Cutaneous (skin) T-cell lymphomas are a group of non-Hodgkin's lymphomas primarily involving the skin and eventually involve lymph nodes, blood and other organs. Mycosis fungoides and Sezary's disease are the most common types of cutaneous T-cell lymphomas.

Common symptoms reported by people with cutaneous T-cell lymphoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with cutaneous T-cell lymphoma

Treatment name(s)
Type
How many have tried
Tried for
Type
Procedures
How many have tried
5
Treatment name(s)

(Valchlor)
Type
Prescription Drug
How many have tried
4
Type
Procedures
How many have tried
3
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Clobex)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Intron A)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Targretin)
Type
Prescription Drug
How many have tried
1
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Treatment name(s)
Type
Prescription Drug
How many have tried
1

Data from patients with cutaneous T-cell lymphoma, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with cutaneous T-cell lymphoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for cutaneous T-cell lymphoma (3 evaluations)
Side effects
sunburn
Total evaluations
3
Treatment name(s)

(Valchlor)
Perceived effectiveness
for cutaneous T-cell lymphoma (2 evaluations)
Side effects
burning sensation itching under skin
Total evaluations
2
Perceived effectiveness
for cutaneous T-cell lymphoma (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for cutaneous T-cell lymphoma (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Clobex)
Perceived effectiveness
for cutaneous T-cell lymphoma (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (2)
Treatment name(s)

(Intron A)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Targretin)
Perceived effectiveness
for cutaneous T-cell lymphoma (1 evaluation)
Side effects
itchy all over rashes (redness, swelling)
Total evaluations
1
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)
Perceived effectiveness
for cutaneous T-cell lymphoma (1 evaluation)
Side effects
constipation headaches 4 more
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cutaneous T-cell lymphoma, who reported starting treatments within the last 5 years.
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Who has cutaneous T-cell lymphoma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 12
30s 28
40s 48
50s 69
60s 92
70+ 81
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 11
30-39 years 16
40-49 years 30
50-59 years 19
60-69 years 13
70+ years 4

Sex

Distribution of sex

62% Female
38% Male

Types
Condition Types Proportion # of patients
Mycosis fungoides 251
Sézary syndrome 19
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 234
Not Diagnosed 19

These charts show data from cutaneous T-cell lymphoma patients who have completed their condition history
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