Cutaneous T-cell lymphoma

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What is cutaneous T-cell lymphoma?

Cutaneous (skin) T-cell lymphomas are a group of non-Hodgkin's lymphomas primarily involving the skin and eventually involve lymph nodes, blood and other organs. Mycosis fungoides and Sezary's disease are the most common types of cutaneous T-cell lymphomas.

Common symptoms reported by people with cutaneous T-cell lymphoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for cutaneous T-cell lymphoma

Treatment name(s)
Type
How many have tried
Tried for
Type
Procedures
How many have tried
143
Treatment name(s)
Type
Prescription Drug
How many have tried
9

Data from patients with cutaneous T-cell lymphoma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with cutaneous T-cell lymphoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for cutaneous T-cell lymphoma (2 evaluations)
Side effects
skin pain sunburn
Total evaluations
2
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cutaneous T-cell lymphoma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has cutaneous T-cell lymphoma on PatientsLikeMe?

  • 1 new patients joined this month
  • 376 say cutaneous T-cell lymphoma is their primary condition

Age
Age Proportion # of patients
<20 1
20s 12
30s 22
40s 47
50s 77
60s 85
70+ 116
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 10
30-39 years 15
40-49 years 32
50-59 years 19
60-69 years 13
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 139
Female 230

Types
Condition Types Proportion # of patients
Mycosis fungoides 264
Sézary syndrome 21
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 249
Not Diagnosed 24

These charts show data from cutaneous T-cell lymphoma patients who have completed their condition history
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