Torticollis

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What is torticollis?

Torticollis is involuntary tonic contractions or intermittent spasms of neck muscles causing the neck to turn from its usual position. It can be present at birth (congenital), inherited or develop as a result of damage to the nervous system or muscles.

Common symptoms reported by people with torticollis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with torticollis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
4
Tried for
torticollis (3) anxious mood (2)
Treatment name(s)

(Botox)
Type
Prescription Drug
How many have tried
3
Tried for
torticollis (3)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
2
Tried for
pain (1) torticollis (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Tylenol PM)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
1
Tried for
torticollis (1)

Data from patients with torticollis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with torticollis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for torticollis (8 evaluations)
Side effects
disorientation dry mouth 2 more
Total evaluations
11
Tried for
torticollis (3) anxious mood (2)
Treatment name(s)

(Botox)
Perceived effectiveness
for torticollis (5 evaluations)
Side effects
weakness in neck (head drop)
Total evaluations
6
Tried for
torticollis (3)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for pain (1 evaluation)
Side effects
muscle soreness numbness in back
Total evaluations
2
Tried for
pain (1) torticollis (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
Total evaluations
3
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
for pain (3 evaluations)
Side effects
brain fog headaches 1 more
Total evaluations
3
Tried for
pain (2)
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (3 evaluations)
Side effects
swelling
Total evaluations
3
Tried for
pain (2)
Treatment name(s)

(Tylenol PM)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Abilify)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
fluid retention weight gain
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
torticollis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with torticollis, who reported starting treatments within the last 5 years.
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Who has torticollis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 6
30s 18
40s 25
50s 43
60s 34
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 12
20-29 years 11
30-39 years 18
40-49 years 15
50-59 years 11
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 28
Female 106

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 87
Not Diagnosed 1

These charts show data from torticollis patients who have completed their condition history
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