Ocular migraine

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is ocular migraine?

An ocular migraine, sometimes called a retinal migraine, is characterized by vision loss in one eye that may or may not be accompanied by headache. An attack may be accompanied by other visual symptoms (e.g. flashing lights) or symptoms such as nausea, vomiting, or sensitivity to light or sound.

Common symptoms reported by people with ocular migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with ocular migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2) pain (1)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Type
Psychotherapy
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(NoDoz)
Type
Over the Counter Drug
How many have tried
1
Tried for
fatigue (1)

Data from patients with ocular migraine, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with ocular migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Percocet)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (2) pain (1)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
blurry vision fibromyalgia
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
high blood pressure (hypertension) tachycardia (fast heart rate)
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)

(Nuvigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(NoDoz)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
problems concentrating
Total evaluations
1
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with ocular migraine, who reported starting treatments within the last 5 years.
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Who has ocular migraine on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 7
30s 15
40s 25
50s 18
60s 12
70+ 6
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 10
30-39 years 9
40-49 years 8
50-59 years 5
60-69 years 1
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 77

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 55
Not Diagnosed 5

These charts show data from ocular migraine patients who have completed their condition history
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