Myopathy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is myopathy?

Myopathy is a general term used to indicate muscle weakness due to dysfunction of muscle fiber. Myopathy can be inherited or acquired.

Common symptoms reported by people with myopathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with myopathy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
myopathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Codeine Contin)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Type
Procedures
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
myopathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Morphine ER)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with myopathy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with myopathy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Adderall)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1) Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
myopathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Codeine Contin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Nerve pain (neuralgia)
Total evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for myopathy (1 evaluation)
Side effects
Total evaluations
1
Tried for
myopathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Morphine ER)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Percocet)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myopathy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has myopathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 0
30s 3
40s 6
50s 4
60s 2
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 4
40-49 years 4
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

63% Female
38% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7
Not Diagnosed 3

These charts show data from myopathy patients who have completed their condition history
Last updated: