Restless genital syndrome

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What is restless genital syndrome?

Restless Genital Syndrome, previously known as Persistent Genital Arousal Disorder, is characterized by an unpleasant sensation in the genital region. The sensation may be burning, tingling, or throbbing in the absence of sexual desire. It is thought there may be a link to restless leg syndrome.

Common symptoms reported by people with restless genital syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with restless genital syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Pristiq)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)
Type
Other
How many have tried
1
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Viagra)
Type
Prescription Drug
How many have tried
1

Data from patients with restless genital syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with restless genital syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tylenol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Pristiq)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Viagra)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with restless genital syndrome, who reported starting treatments within the last 5 years.
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Who has restless genital syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 4
40s 6
50s 1
60s 4
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 3
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 13

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 3

These charts show data from restless genital syndrome patients who have completed their condition history
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