What is Tolosa-Hunt syndrome?

Tolosa Hunt Syndrome is characterized as painful eye movements due to weakness of eye muscles accompanied by severe periorbital headaches. The underlying cause is an idiopathic granulomatous inflammation of the cavernous sinus.

How do members experience Tolosa-Hunt syndrome?

Top 5 symptoms reported by people with Tolosa-Hunt syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Tolosa-Hunt syndrome*

Who has Tolosa-Hunt syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 1
40s 1
50s 2
60s 1
70+ 2

Distribution of sex

Sex

Sex Proportion # of patients
Male 2
Female 5