What is osteogenesis imperfecta?

Osteogenesis imperfecta is a genetic disorder. The term means imperfect bone formation and people with this condition have bones that break easily, often from mild trauma or with no apparent cause. Genetic factors are increasingly being used to define the different forms of osteogenesis imperfecta.

How do members experience osteogenesis imperfecta?

Top 5 symptoms reported by people with osteogenesis imperfecta*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for osteogenesis imperfecta*

Who has osteogenesis imperfecta on PatientsLikeMe?

Age

Age Proportion # of patients
<20 4
20s 5
30s 14
40s 13
50s 10
60s 8
70+ 3

Distribution of sex

Sex

Sex Proportion # of patients
Male 16
Female 43