Sickle beta thalassemia

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What is sickle beta thalassemia?

Sickle cell beta thalassemia, a type of sickle cell disease, is an inherited condition characterized by sickle shaped blood cells along with the beta thalassemia defect, which causes cells to be smaller and paler than usual. The disease may cause pain or swelling and increases risk of infection.

Common symptoms reported by people with sickle beta thalassemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with sickle beta thalassemia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Actiq)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with sickle beta thalassemia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with sickle beta thalassemia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Actiq)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Naprosyn)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with sickle beta thalassemia, who reported starting treatments within the last 5 years.
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Who has sickle beta thalassemia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 2
40s 2
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 4

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from sickle beta thalassemia patients who have completed their condition history
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No data

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