Telogen effluvium

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is telogen effluvium?

Telogen Effluvium is a form of non-scarring hair loss that results from an abnormal shift of follicular cycling. Less than 50% of hair loss occurs. Management typically includes removal of an underlying cause, psychosocial support, and cosmetic measures. Hair transplantation is not recommended.

Common symptoms reported by people with telogen effluvium

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with telogen effluvium

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Vyvanse)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Ritalin)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)

Data from patients with telogen effluvium, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with telogen effluvium

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
dry mouth
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Stevens Johnson syndrome
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Vyvanse)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
blood pooling in limbs cold sensation in feet
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Ritalin)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
nervousness
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Pamelor)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with telogen effluvium, who reported starting treatments within the last 5 years.
Last updated:

Who has telogen effluvium on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 4
40s 2
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 3
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 8

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 0

These charts show data from telogen effluvium patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have telogen effluvium through your profile, those stories and data appear here too.

Got a question about living with telogen effluvium? Members in the forum might have the answers.