Bainbridge-Ropers syndrome

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What is Bainbridge-Ropers syndrome?

Bainbridge Roper Syndrome is a rare genetic syndrome associated with a mutation in the ASXL3 gene. Individuals with this condition have intellectual disability, severe feeding problems, motor skill issues, and increased mortality. It can resemble Bohring-Opitz syndrome but is not the same.

Common symptoms reported by people with Bainbridge-Ropers syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Bainbridge-Ropers syndrome

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Got a question about living with Bainbridge-Ropers syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Bainbridge-Ropers syndrome

Let’s build this page together! When you share what it’s like to have Bainbridge-Ropers syndrome through your profile, those stories and data appear here too.

Got a question about living with Bainbridge-Ropers syndrome? Members in the forum might have the answers.

Who has Bainbridge-Ropers syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 0
30s 3
40s 1
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 7

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from Bainbridge-Ropers syndrome patients who have completed their condition history
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