Chromosome 9p deletion and ring

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is chromosome 9p deletion and ring?

Chromosome 9p deletion and ring is a rare chromosomal abnormality leading to a variety of signs and symptoms based on the extent of deletion. Individuals with this condition may experience developmental delay, abnormal head shape, and low muscle tone. There is no cure but therapies are available.

Common symptoms reported by people with chromosome 9p deletion and ring

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with chromosome 9p deletion and ring

No data

Let’s build this page together! When you share what it’s like to have chromosome 9p deletion and ring through your profile, those stories and data appear here too.

Got a question about living with chromosome 9p deletion and ring? Members in the forum might have the answers.

Compare treatments taken by people with chromosome 9p deletion and ring

No data

Let’s build this page together! When you share what it’s like to have chromosome 9p deletion and ring through your profile, those stories and data appear here too.

Got a question about living with chromosome 9p deletion and ring? Members in the forum might have the answers.

Who has chromosome 9p deletion and ring on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 0
30s 0
40s 0
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 0

These charts show data from chromosome 9p deletion and ring patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have chromosome 9p deletion and ring through your profile, those stories and data appear here too.

Got a question about living with chromosome 9p deletion and ring? Members in the forum might have the answers.