Spontaneous intracranial hypotension

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What is spontaneous intracranial hypotension?

Spontaneous intracranial hypotension is a neurological condition that causes decreased intracranial pressure for no apparent reason. Negative pressure occurs within the brain cavity and may cause a headache when sitting upright, nausea, and vomiting.

Common symptoms reported by people with spontaneous intracranial hypotension

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with spontaneous intracranial hypotension

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Type
Lifestyle Modification
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Myofascial release)
Type
Physical Therapy
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Opana ER)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Leg brace)
Type
Equipment
How many have tried
1
Tried for
Pain (1)

Data from patients with spontaneous intracranial hypotension, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with spontaneous intracranial hypotension

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
drowsiness
Total evaluations
3
Tried for
anxious mood (1)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Myofascial release)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)

(Opana ER)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Leg brace)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with spontaneous intracranial hypotension, who reported starting treatments within the last 5 years.
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Who has spontaneous intracranial hypotension on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 4
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 1
30-39 years 0
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

100% Female
0% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from spontaneous intracranial hypotension patients who have completed their condition history
Last updated:
No data

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