Twin-to-twin transfusion syndrome

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What is twin-to-twin transfusion syndrome?

Twin-to-twin transfusion syndrome (TTTS) is a rare blood disorder that can affect identical twins. It occurs when the blood supply of one twin moves to the other via the shared placenta. This can result in too little blood for one and too much blood for the other, which can cause problems in both.

Common symptoms reported by people with twin-to-twin transfusion syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with twin-to-twin transfusion syndrome

No data

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Compare treatments taken by people with twin-to-twin transfusion syndrome

No data

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Who has twin-to-twin transfusion syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 3
40s 1
50s 1
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 1
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 7

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from twin-to-twin transfusion syndrome patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have twin-to-twin transfusion syndrome through your profile, those stories and data appear here too.

Got a question about living with twin-to-twin transfusion syndrome? Members in the forum might have the answers.