Twin-to-twin transfusion syndrome

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What is twin-to-twin transfusion syndrome?

Twin-to-twin transfusion syndrome (TTTS) is a rare blood disorder that can affect identical twins. It occurs when the blood supply of one twin moves to the other via the shared placenta. This can result in too little blood for one and too much blood for the other, which can cause problems in both.

Common symptoms reported by people with twin-to-twin transfusion syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with twin-to-twin transfusion syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tranxene)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with twin-to-twin transfusion syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with twin-to-twin transfusion syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tranxene)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
dizziness
Total evaluations
1
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with twin-to-twin transfusion syndrome, who reported starting treatments within the last 5 years.
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Who has twin-to-twin transfusion syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 2
40s 1
50s 1
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 1
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

86% Female
14% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from twin-to-twin transfusion syndrome patients who have completed their condition history
Last updated:
No data

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