Myasthenia gravis

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What is myasthenia gravis?

Myasthenia gravis is a neuromuscular disorder characterized by variable weakness of voluntary muscles, which often improves with rest and worsens with activity. The condition is caused by an abnormal immune response affecting the transmission of signals from nerves to muscles.

Common symptoms reported by people with myasthenia gravis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with myasthenia gravis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Mestinon)
Type
Prescription Drug
How many have tried
50
Tried for
myasthenia gravis (49) drooping eyelid (ptosis) (2)
3 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
35
Tried for
myasthenia gravis (35)
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
23
Tried for
myasthenia gravis (23) double vision (diplopia) (1)
3 more
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
13
Tried for
myasthenia gravis (13)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
12
Tried for
myasthenia gravis (11) double vision (diplopia) (1)
4 more
Treatment name(s)
Type
Procedures
How many have tried
5
Tried for
myasthenia gravis (5)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2) myasthenia gravis (1)

Data from patients with myasthenia gravis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with myasthenia gravis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Mestinon)
Perceived effectiveness
for myasthenia gravis (33 evaluations)
Side effects
diarrhea nausea 9 more
Total evaluations
34
Tried for
myasthenia gravis (49) drooping eyelid (ptosis) (2)
3 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for myasthenia gravis (16 evaluations)
Side effects
weight gain blood sugar swings 7 more
Total evaluations
16
Tried for
myasthenia gravis (35)
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for myasthenia gravis (16 evaluations)
Side effects
headaches allergic reaction 5 more
Total evaluations
16
Tried for
myasthenia gravis (23) double vision (diplopia) (1)
3 more
Treatment name(s)

(CellCept)
Perceived effectiveness
for myasthenia gravis (10 evaluations)
Side effects
diarrhea difficulty staying asleep 2 more
Total evaluations
10
Tried for
myasthenia gravis (13)
Treatment name(s)

(Imuran)
Perceived effectiveness
for myasthenia gravis (12 evaluations)
Side effects
hair loss upset stomach 6 more
Total evaluations
13
Tried for
myasthenia gravis (11) double vision (diplopia) (1)
4 more
Treatment name(s)
Perceived effectiveness
for myasthenia gravis (2 evaluations)
Side effects
nausea
Total evaluations
2
Tried for
myasthenia gravis (5)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
bipolar depressive episodes brain fog 4 more
Total evaluations
4
Tried for
anxious mood (3)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
insomnia
Total evaluations
3
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2) myasthenia gravis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myasthenia gravis, who reported starting treatments within the last 5 years.
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Who has myasthenia gravis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 13
20s 44
30s 119
40s 197
50s 258
60s 202
70+ 108
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 50
20-29 years 53
30-39 years 76
40-49 years 70
50-59 years 60
60-69 years 28
70+ years 9

Distribution of sex

Sex
Sex Proportion # of patients
Male 236
Female 727

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 394
Not Diagnosed 22

These charts show data from myasthenia gravis patients who have completed their condition history
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