Myasthenia gravis

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What is myasthenia gravis?

Myasthenia gravis is a neuromuscular disorder characterized by variable weakness of voluntary muscles, which often improves with rest and worsens with activity. The condition is caused by an abnormal immune response affecting the transmission of signals from nerves to muscles.

Common symptoms reported by people with myasthenia gravis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with myasthenia gravis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Mestinon)
Type
Prescription Drug
How many have tried
49
Tried for
myasthenia gravis (48) drooping eyelid (ptosis) (2)
3 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
33
Tried for
myasthenia gravis (33)
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
25
Tried for
myasthenia gravis (25) double vision (diplopia) (1)
3 more
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
12
Tried for
myasthenia gravis (11) double vision (diplopia) (1)
4 more
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
11
Tried for
myasthenia gravis (11)
Treatment name(s)
Type
Procedures
How many have tried
4
Tried for
myasthenia gravis (4)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (1) myasthenia gravis (1)
1 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3) myasthenia gravis (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)

Data from patients with myasthenia gravis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with myasthenia gravis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Mestinon)
Perceived effectiveness
for myasthenia gravis (33 evaluations)
Side effects
diarrhea nausea 9 more
Total evaluations
34
Tried for
myasthenia gravis (48) drooping eyelid (ptosis) (2)
3 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for myasthenia gravis (17 evaluations)
Side effects
weight gain acne breakout 11 more
Total evaluations
17
Tried for
myasthenia gravis (33)
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for myasthenia gravis (17 evaluations)
Side effects
headaches allergic reaction 7 more
Total evaluations
19
Tried for
myasthenia gravis (25) double vision (diplopia) (1)
3 more
Treatment name(s)

(Imuran)
Perceived effectiveness
for myasthenia gravis (13 evaluations)
Side effects
hair loss nausea 8 more
Total evaluations
14
Tried for
myasthenia gravis (11) double vision (diplopia) (1)
4 more
Treatment name(s)

(CellCept)
Perceived effectiveness
for myasthenia gravis (9 evaluations)
Side effects
diarrhea difficulty sleeping through night 1 more
Total evaluations
9
Tried for
myasthenia gravis (11)
Treatment name(s)
Perceived effectiveness
for myasthenia gravis (2 evaluations)
Side effects
nausea
Total evaluations
2
Tried for
myasthenia gravis (4)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
bipolar depressive episodes brain fog 4 more
Total evaluations
4
Tried for
anxious mood (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
increased appetite
Total evaluations
2
Tried for
anxious mood (1) myasthenia gravis (1)
1 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (3) myasthenia gravis (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myasthenia gravis, who reported starting treatments within the last 5 years.
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Who has myasthenia gravis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 13
20s 41
30s 117
40s 195
50s 255
60s 195
70+ 105
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 50
20-29 years 53
30-39 years 75
40-49 years 70
50-59 years 58
60-69 years 27
70+ years 9

Sex

Distribution of sex

76% Female
24% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 379
Not Diagnosed 22

These charts show data from myasthenia gravis patients who have completed their condition history
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