Myoclonic dystonia

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What is myoclonic dystonia?

Myoclonic dystonia is a hereditary type of dystonia. It is characterized as shock-like, or spastic contractions or cramping of a portion of a muscle, an entire muscle, or a group of muscles.

Common symptoms reported by people with myoclonic dystonia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with myoclonic dystonia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Toradol)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Leg brace)
Type
Equipment
How many have tried
1
Tried for
pain (1)

Data from patients with myoclonic dystonia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with myoclonic dystonia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Toradol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Leg brace)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myoclonic dystonia, who reported starting treatments within the last 5 years.
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Who has myoclonic dystonia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 3
40s 1
50s 6
60s 2
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 3
50-59 years 0
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 12

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7
Not Diagnosed 1

These charts show data from myoclonic dystonia patients who have completed their condition history
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