Nonclassical congenital adrenal hyperplasia

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What is nonclassical congenital adrenal hyperplasia?

Non-classical congenital adrenal hyperplasia is a condition affecting the level of cortisol, a hormone produced by the adrenal glands. Characteristics include early sexual development. Women may also have issues with fertility. A mild form of the disease may have no symptoms.

Common symptoms reported by people with nonclassical congenital adrenal hyperplasia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with nonclassical congenital adrenal hyperplasia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Type
Procedures
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Leg brace)
Type
Equipment
How many have tried
1
Tried for
pain (1)

Data from patients with nonclassical congenital adrenal hyperplasia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with nonclassical congenital adrenal hyperplasia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Leg brace)
Perceived effectiveness
for pain (1 evaluation)
Side effects
swelling in knees
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with nonclassical congenital adrenal hyperplasia, who reported starting treatments within the last 5 years.
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Who has nonclassical congenital adrenal hyperplasia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 4
30s 2
40s 0
50s 2
60s 3
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 1
30-39 years 1
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 13

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from nonclassical congenital adrenal hyperplasia patients who have completed their condition history
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