Hailey-Hailey disease

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What is Hailey-Hailey disease?

Hailey-Hailey Disease or Familial benign pemphigus is a rare skin condition characterized by blisters and lesions most often occur in folds of skin, such as the neck, armpits, and/or genitals. Exposure to heat, sweat, and friction cause the skin problems to worsen.

Common symptoms reported by people with Hailey-Hailey disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Hailey-Hailey disease

Let’s build this page together! When you share what it’s like to have Hailey-Hailey disease through your profile, those stories and data appear here too.

Got a question about living with Hailey-Hailey disease? Members in the forum might have the answers.

Compare treatments taken by people with Hailey-Hailey disease

Let’s build this page together! When you share what it’s like to have Hailey-Hailey disease through your profile, those stories and data appear here too.

Got a question about living with Hailey-Hailey disease? Members in the forum might have the answers.

Who has Hailey-Hailey disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 2
40s 2
50s 4
60s 4
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 3
30-39 years 1
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 5
Female 14

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6
Not Diagnosed 0

These charts show data from Hailey-Hailey disease patients who have completed their condition history
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