Frontal fibrosing alopecia

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What is frontal fibrosing alopecia?

Frontal fibrosing alopecia is a rare condition in which hair loss follows a distinctive pattern characterized by progressive recession of the frontal hairline, with or without progressive loss of eyebrows. Frontal fibrosing alopecia is considered to be a variant of lichen planopilaris.

Common symptoms reported by people with frontal fibrosing alopecia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with frontal fibrosing alopecia

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Compare treatments taken by people with frontal fibrosing alopecia

Let’s build this page together! When you share what it’s like to have frontal fibrosing alopecia through your profile, those stories and data appear here too.

Got a question about living with frontal fibrosing alopecia? Members in the forum might have the answers.

Who has frontal fibrosing alopecia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 4
40s 1
50s 15
60s 8
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 1
40-49 years 4
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 32

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 0

These charts show data from frontal fibrosing alopecia patients who have completed their condition history
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