Hyper IgE syndrome

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What is hyper IgE syndrome?

Hyper IgE syndrome is a rare condition characterized by elevated serum IgE levels, in addition to eczema and/or rash (dermatitis) and recurrent bacterial infections of the skin and lung.

Common symptoms reported by people with hyper IgE syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hyper IgE syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Plus CBD Oil)
Type
Other
How many have tried
1
Tried for
anxious mood (1) fatigue (1)
1 more
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Opana ER)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Talwin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with hyper IgE syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hyper IgE syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(BuSpar)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Plus CBD Oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) fatigue (1)
1 more
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Opana ER)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Talwin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hyper IgE syndrome, who reported starting treatments within the last 5 years.
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Who has hyper IgE syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 3
30s 3
40s 4
50s 4
60s 2
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 0
30-39 years 1
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Sex

Distribution of sex

68% Female
32% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8
Not Diagnosed 4

These charts show data from hyper IgE syndrome patients who have completed their condition history
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