Lattice degeneration

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is lattice degeneration?

Lattice degeneration is a disease of the eye that involves the peripheral retina. The retina is responsible for helping your brain form a visual image. In this condition, the peripheral retina begins to waste away in oval or linear patches of retinal thinning, often leading to tearing.

Common symptoms reported by people with lattice degeneration

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with lattice degeneration

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
anxious mood (1) pain (1)
1 more
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Depakote)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Relafen)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Leg brace)
Type
Equipment
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Nature's Bounty Vitamin B-12 Sublingual)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)

Data from patients with lattice degeneration, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with lattice degeneration

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) pain (1)
1 more
Treatment name(s)

(Celebrex)
Perceived effectiveness
No evaluations
Side effects
abdominal pain indigestion
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Depakote)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Relafen)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Leg brace)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Nature's Bounty Vitamin B-12 Sublingual)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with lattice degeneration, who reported starting treatments within the last 5 years.
Last updated:

Who has lattice degeneration on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 6
40s 0
50s 2
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 1
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

50% Female
50% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 0

These charts show data from lattice degeneration patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have lattice degeneration through your profile, those stories and data appear here too.

Got a question about living with lattice degeneration? Members in the forum might have the answers.