Scoliosis

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is scoliosis?

Scoliosis is a curvature of the spine. It is classified as congenital when a deformity is present at birth; idiopathic when the cause is unknown; or neuromuscular when it develops as a secondary symptom of another condition such as spina bifida, cerebral palsy or trauma.

Common symptoms reported by people with scoliosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with scoliosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
19
Tried for
scoliosis (18) pain (2)
1 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
16
Tried for
pain (15) scoliosis (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
14
Tried for
depressed mood (13) pain (3)
2 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
13
Tried for
pain (13)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
13
Tried for
pain (13) scoliosis (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
11
Tried for
anxious mood (10) depressed mood (1)
2 more
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
8
Tried for
pain (8) depressed mood (1)
1 more
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
8
Tried for
pain (8) scoliosis (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
8
Tried for
pain (8)

Data from patients with scoliosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with scoliosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for scoliosis (6 evaluations)
Side effects
pain back pain 5 more
Total evaluations
9
Tried for
scoliosis (18) pain (2)
1 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (8 evaluations)
Side effects
drowsiness constipation 5 more
Total evaluations
10
Tried for
pain (15) scoliosis (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (8 evaluations)
Side effects
dry mouth daytime sleepiness 4 more
Total evaluations
27
Tried for
depressed mood (13) pain (3)
2 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (11 evaluations)
Side effects
drowsiness balance problems 11 more
Total evaluations
12
Tried for
pain (13)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (8 evaluations)
Side effects
constipation dizziness 6 more
Total evaluations
8
Tried for
pain (13) scoliosis (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (8 evaluations)
Side effects
drowsiness excessive daytime sleepiness (somnolence)
Total evaluations
12
Tried for
anxious mood (10) depressed mood (1)
2 more
Treatment name(s)

(Percocet)
Perceived effectiveness
for pain (3 evaluations)
Side effects
fatigue
Total evaluations
3
Tried for
pain (9)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (11 evaluations)
Side effects
constipation dizziness 8 more
Total evaluations
11
Tried for
pain (8) depressed mood (1)
1 more
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (8) scoliosis (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (4 evaluations)
Side effects
anxious mood dizziness 2 more
Total evaluations
5
Tried for
pain (8)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with scoliosis, who reported starting treatments within the last 5 years.
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Who has scoliosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 27
20s 231
30s 308
40s 363
50s 333
60s 200
70+ 65
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 443
20-29 years 80
30-39 years 66
40-49 years 51
50-59 years 21
60-69 years 7
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 175
Female 1,359

Types
Condition Types Proportion # of patients
Congenital 7
Dextroscoliosis 19
Idiopathic 16
Levoscoliosis 14
Neuromuscular 2
Syndromic 0
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,161
Not Diagnosed 27

These charts show data from scoliosis patients who have completed their condition history
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