Loeys-Dietz syndrome

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What is Loeys-Dietz syndrome?

Loeys Dietz syndrome is a connective tissue disorder characterized by weakened outpouchings of the aorta (aortic aneurysms) in children. In Loeys-Dietz syndrome, the aortic aneurysms may rupture at a smaller size than other aneurysms.

Common symptoms reported by people with Loeys-Dietz syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Loeys-Dietz syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with Loeys-Dietz syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Loeys-Dietz syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Loeys-Dietz syndrome, who reported starting treatments within the last 5 years.
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Who has Loeys-Dietz syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 1
30s 1
40s 0
50s 4
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

80% Female
20% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 1

These charts show data from Loeys-Dietz syndrome patients who have completed their condition history
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