Loeys-Dietz syndrome

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What is Loeys-Dietz syndrome?

Loeys Dietz syndrome is a connective tissue disorder characterized by weakened outpouchings of the aorta (aortic aneurysms) in children. In Loeys-Dietz syndrome, the aortic aneurysms may rupture at a smaller size than other aneurysms.

Common symptoms reported by people with Loeys-Dietz syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Loeys-Dietz syndrome

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Got a question about living with Loeys-Dietz syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Loeys-Dietz syndrome

Let’s build this page together! When you share what it’s like to have Loeys-Dietz syndrome through your profile, those stories and data appear here too.

Got a question about living with Loeys-Dietz syndrome? Members in the forum might have the answers.

Who has Loeys-Dietz syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 3
30s 1
40s 2
50s 6
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 5
Female 12

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 1

These charts show data from Loeys-Dietz syndrome patients who have completed their condition history
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