Progressive bulbar palsy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is progressive bulbar palsy?

Progressive Bulbar Palsy (PBP), also known as progressive bulbar atrophy, is a type of motor neuron disease that affects the nerves that supply the bulbar muscles, those muscles that control speech, swallowing and chewing. PBP may also result in weakness of the facial muscles and tongue.

Common symptoms reported by people with progressive bulbar palsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with progressive bulbar palsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Rilutek)
Type
Prescription Drug
How many have tried
3
Tried for
progressive bulbar palsy (3)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
1
Tried for
progressive bulbar palsy (1)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Nuedexta)
Type
Prescription Drug
How many have tried
1
Tried for
progressive bulbar palsy (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Mucinex)
Type
Over the Counter Drug
How many have tried
1
Tried for
progressive bulbar palsy (1)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
1
Tried for
pain (1)

Data from patients with progressive bulbar palsy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with progressive bulbar palsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Rilutek)
Perceived effectiveness
for progressive bulbar palsy (9 evaluations)
Side effects
diarrhea fatigue 1 more
Total evaluations
10
Tried for
progressive bulbar palsy (3)
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for progressive bulbar palsy (1 evaluation)
Side effects
Total evaluations
1
Tried for
progressive bulbar palsy (1)
Treatment name(s)

(Celebrex)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Nuedexta)
Perceived effectiveness
for progressive bulbar palsy (1 evaluation)
Side effects
Total evaluations
1
Tried for
progressive bulbar palsy (1)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Mucinex)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
progressive bulbar palsy (1)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with progressive bulbar palsy, who reported starting treatments within the last 5 years.
Last updated:

Who has progressive bulbar palsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 7
50s 14
60s 23
70+ 23
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 1
40-49 years 3
50-59 years 4
60-69 years 9
70+ years 3

Sex

Distribution of sex

55% Female
45% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 27
Not Diagnosed 2

These charts show data from progressive bulbar palsy patients who have completed their condition history
Last updated: