Progressive bulbar palsy

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What is progressive bulbar palsy?

Progressive Bulbar Palsy (PBP), also known as progressive bulbar atrophy, is a type of motor neuron disease that affects the nerves that supply the bulbar muscles, those muscles that control speech, swallowing and chewing. PBP may also result in weakness of the facial muscles and tongue.

Common symptoms reported by people with progressive bulbar palsy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with progressive bulbar palsy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Rilutek)
Type
Prescription Drug
How many have tried
2
Tried for
progressive bulbar palsy (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
1
Tried for
progressive bulbar palsy (1)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Mucinex)
Type
Over the Counter Drug
How many have tried
1
Tried for
progressive bulbar palsy (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(BiPAP machine)
Type
Equipment
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Permobil C300)
Type
Equipment
How many have tried
1
Tried for
fatigue (1)

Data from patients with progressive bulbar palsy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with progressive bulbar palsy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (2)
Treatment name(s)

(Rilutek)
Perceived effectiveness
for progressive bulbar palsy (7 evaluations)
Side effects
diarrhea stomach pain
Total evaluations
8
Tried for
progressive bulbar palsy (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for progressive bulbar palsy (1 evaluation)
Side effects
Total evaluations
1
Tried for
progressive bulbar palsy (1)
Treatment name(s)

(Celebrex)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Mucinex)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
progressive bulbar palsy (1)
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(BiPAP machine)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
sudden complete dry mouth
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)

(Permobil C300)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with progressive bulbar palsy, who reported starting treatments within the last 5 years.
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Who has progressive bulbar palsy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 7
50s 15
60s 27
70+ 25
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 1
40-49 years 3
50-59 years 4
60-69 years 9
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 34
Female 39

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 28
Not Diagnosed 2

These charts show data from progressive bulbar palsy patients who have completed their condition history
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