Cushing's syndrome

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What is Cushing's syndrome?

Cushing’s syndrome is a hormonal disorder caused by prolonged exposure of the body’s tissues to high levels of the hormone cortisol. The most common cause of the syndrome is Cushing's disease which is due to excess production of the hormone ACTH by the pituitary gland.

Common symptoms reported by people with Cushing's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Cushing's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cortef)
Type
Prescription Drug
How many have tried
3
Tried for
Cushing's syndrome (3)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)
Type
Surgery
How many have tried
1
Tried for
Cushing's syndrome (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Diflucan)
Type
Prescription Drug
How many have tried
1
Tried for
Cushing's syndrome (1)
Treatment name(s)

(Dilaudid)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Nizoral)
Type
Prescription Drug
How many have tried
1
Tried for
Cushing's syndrome (1)

Data from patients with Cushing's syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Cushing's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cortef)
Perceived effectiveness
for Cushing's syndrome (1 evaluation)
Side effects
Total evaluations
1
Tried for
Cushing's syndrome (3)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (2)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (2)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Cushing's syndrome (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
depressed mood (1)
Treatment name(s)

(Diflucan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Cushing's syndrome (1)
Treatment name(s)

(Dilaudid)
Perceived effectiveness
for pain (1 evaluation)
Side effects
excessive yawning itching
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Advil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Nizoral)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Cushing's syndrome (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Cushing's syndrome, who reported starting treatments within the last 5 years.
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Who has Cushing's syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 6
30s 30
40s 58
50s 44
60s 26
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 14
30-39 years 18
40-49 years 20
50-59 years 10
60-69 years 2
70+ years 0

Sex

Distribution of sex

87% Female
13% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 76
Not Diagnosed 12

These charts show data from Cushing's syndrome patients who have completed their condition history
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