Nephroptosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is nephroptosis?

Nephroptosis is characterized as a kidney that is not properly supported by the surrounding tissue, it is mobile and can descends with movement, usually from sitting or lying down to a standing position.

Common symptoms reported by people with nephroptosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with nephroptosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Lifestyle Modification
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Over the Counter Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with nephroptosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with nephroptosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with nephroptosis, who reported starting treatments within the last 5 years.
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Who has nephroptosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 2
40s 1
50s 1
60s 1
70+ 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 7

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 1

These charts show data from nephroptosis patients who have completed their condition history
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Let’s build this page together! When you share what it’s like to have nephroptosis through your profile, those stories and data appear here too.

Got a question about living with nephroptosis? Members in the forum might have the answers.