Systemic vasculitis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is systemic vasculitis?

Systemic vasculitis is the inflammation of the blood vessels. The inflammation can decrease blood flow or even stop the blood flow; vessels can expand, thicken, and weaken, leading to a bulge (or aneurysm) or possibly a ruptured blood vessel.

Common symptoms reported by people with systemic vasculitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with systemic vasculitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
systemic vasculitis (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Dilaudid)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
1
Tried for
systemic vasculitis (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
depressed mood (1) fatigue (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with systemic vasculitis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with systemic vasculitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
drowsiness fatigue
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
systemic vasculitis (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Dilaudid)
Perceived effectiveness
for pain (1 evaluation)
Side effects
nausea
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(CellCept)
Perceived effectiveness
for systemic vasculitis (1 evaluation)
Side effects
tiredness
Total evaluations
1
Tried for
systemic vasculitis (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1) fatigue (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (1 evaluation)
Side effects
nausea
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with systemic vasculitis, who reported starting treatments within the last 5 years.
Last updated:

Who has systemic vasculitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 3
30s 8
40s 21
50s 24
60s 11
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 4
30-39 years 14
40-49 years 5
50-59 years 6
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 7
Female 65

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 43
Not Diagnosed 1

These charts show data from systemic vasculitis patients who have completed their condition history
Last updated: