Stiff heart syndrome

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What is stiff heart syndrome?

Stiff heart syndrome also known as cardiac amyloidosis, occurs when protein is deposited in the heart and takes the place of heart muscle. Over time, the protein deposits replace heart tissue and this leads to heart failure.

Common symptoms reported by people with stiff heart syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with stiff heart syndrome

No data

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Compare treatments taken by people with stiff heart syndrome

No data

Let’s build this page together! When you share what it’s like to have stiff heart syndrome through your profile, those stories and data appear here too.

Got a question about living with stiff heart syndrome? Members in the forum might have the answers.

Who has stiff heart syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 0
40s 1
50s 4
60s 4
70+ 8
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 3
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 16

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from stiff heart syndrome patients who have completed their condition history
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