Floppy eyelid syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is floppy eyelid syndrome?

Floppy eyelid syndrome is characterized as flaccid upper lids that can be easily everted or turned inside out. The floppiness of the eyelid may lead to irritation, dryness, and a burning sensation in the eye.

Common symptoms reported by people with floppy eyelid syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with floppy eyelid syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
pain (1)

Data from patients with floppy eyelid syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with floppy eyelid syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with floppy eyelid syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has floppy eyelid syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 1
40s 1
50s 2
60s 3
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Sex

Distribution of sex

50% Female
50% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from floppy eyelid syndrome patients who have completed their condition history
Last updated: