OCD (Obsessive-Compulsive Disorder)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is OCD (Obsessive-Compulsive Disorder)?

Obsessive compulsive disorder (OCD) is an anxiety disorder characterized by recurrent, persistent obsessions or compulsions. Obsessions are the intrusive ideas, thoughts, or images and compulsions are repetitive and seemingly purposeful behavior generally recognized as senseless.

Common symptoms reported by people with OCD (Obsessive-Compulsive Disorder)

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with OCD (Obsessive-Compulsive Disorder)

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
53
Check to add this treatment to your profile
Treatment name(s)
Type
Psychotherapy
How many have tried
41
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
38
Tried for
Anxious mood (36) Insomnia (7)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
35
Check to add this treatment to your profile
Treatment name(s)

(Seroquel)
Type
Prescription Drug
How many have tried
28
Tried for
Insomnia (21) OCD (Obsessive-Compulsive Disorder) (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
23
Check to add this treatment to your profile
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
20
Tried for
Anxious mood (7) Depressed mood (7)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Type
Prescription Drug
How many have tried
20
Tried for
Pain (20)
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
20
Tried for
Insomnia (19) Anxious mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
17
Tried for
Depressed mood (9) Anxious mood (8)
1 more

Data from patients with OCD (Obsessive-Compulsive Disorder), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with OCD (Obsessive-Compulsive Disorder)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Prozac)
Perceived effectiveness
for OCD (Obsessive-Compulsive Disorder) (14 evaluations)
Side effects
Apathy Bipolar manic episodes 7 more
How many evaluations
17
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
for OCD (Obsessive-Compulsive Disorder) (7 evaluations)
Side effects
How many evaluations
8
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (24 evaluations)
Side effects
Sleepiness Bipolar depressive episodes 18 more
How many evaluations
29
Tried for
Anxious mood (36) Insomnia (7)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Zoloft)
Perceived effectiveness
for OCD (Obsessive-Compulsive Disorder) (16 evaluations)
Side effects
Depressed mood Sex drive (libido) decreased 16 more
How many evaluations
31
Check to add this treatment to your profile
Treatment name(s)

(Seroquel)
Perceived effectiveness
for Insomnia (12 evaluations)
Side effects
Drowsiness Nausea 10 more
How many evaluations
18
Tried for
Insomnia (21) OCD (Obsessive-Compulsive Disorder) (6)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Ativan)
Perceived effectiveness
for Anxious mood (19 evaluations)
Side effects
Addiction Daytime sleepiness 4 more
How many evaluations
23
Check to add this treatment to your profile
Treatment name(s)

(Celexa)
Perceived effectiveness
for Anxious mood (4 evaluations)
Side effects
Anorgasmia Anxiety and frustration 7 more
How many evaluations
15
Tried for
Anxious mood (7) Depressed mood (7)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Vicodin)
Perceived effectiveness
for Pain (14 evaluations)
Side effects
Addiction Constipation 2 more
How many evaluations
14
Tried for
Pain (20)
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (13 evaluations)
Side effects
Excessive daytime sleepiness (somnolence) Grogginess 2 more
How many evaluations
13
Tried for
Insomnia (19) Anxious mood (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Lexapro)
Perceived effectiveness
for Depressed mood (8 evaluations)
Side effects
Abdominal bloating Brain zaps 13 more
How many evaluations
10
Tried for
Depressed mood (9) Anxious mood (8)
1 more

Data from patients with OCD (Obsessive-Compulsive Disorder), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has OCD (Obsessive-Compulsive Disorder) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 55
20s 743
30s 951
40s 901
50s 563
60s 199
70+ 43

Sex

Distribution of sex

76% Female
24% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 921
20-29 years 226
30-39 years 121
40-49 years 57
50-59 years 11
60-69 years 3
70+ years 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,775
Not Diagnosed 1,770

These charts show data from OCD patients who have completed their condition history
Last updated: