Neuromyelitis optica

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What is neuromyelitis optica?

Neuromyelitis optica (NMO), also known as Devic's disease, is an autoimmune, inflammatory disorder in which a person's own immune system attacks the optic nerves and spinal cord. This produces an inflammation of the optic nerve (optic neuritis) and the spinal cord (myelitis).

Common symptoms reported by people with neuromyelitis optica

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with neuromyelitis optica

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
16
Tried for
neuromyelitis optica (16)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
5
Tried for
neuromyelitis optica (5)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
4
Tried for
neuromyelitis optica (4)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
3
Tried for
neuromyelitis optica (3)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
neuromyelitis optica (3)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)
Type
Procedures
How many have tried
2
Tried for
neuromyelitis optica (2)
Treatment name(s)

(Panafcortelone)
Type
Prescription Drug
How many have tried
2
Tried for
neuromyelitis optica (2)

Data from patients with neuromyelitis optica, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with neuromyelitis optica

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Rituxan)
Perceived effectiveness
for neuromyelitis optica (12 evaluations)
Side effects
fatigue allergies 5 more
Total evaluations
12
Tried for
neuromyelitis optica (16)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for neuromyelitis optica (3 evaluations)
Side effects
Total evaluations
3
Treatment name(s)

(CellCept)
Perceived effectiveness
for neuromyelitis optica (1 evaluation)
Side effects
Total evaluations
1
Tried for
neuromyelitis optica (5)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for neuromyelitis optica (2 evaluations)
Side effects
weight gain blurry vision 6 more
Total evaluations
2
Tried for
neuromyelitis optica (4)
Treatment name(s)

(Imuran)
Perceived effectiveness
for neuromyelitis optica (1 evaluation)
Side effects
nausea if taken on empty stomach
Total evaluations
1
Tried for
neuromyelitis optica (3)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
sluggish cognitive tempo tiredness
Total evaluations
1
Tried for
neuromyelitis optica (3)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
Total evaluations
3
Tried for
depressed mood (2)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
bowel problems constipation
Total evaluations
2
Tried for
pain (2)
Treatment name(s)
Perceived effectiveness
for neuromyelitis optica (1 evaluation)
Side effects
Total evaluations
1
Tried for
neuromyelitis optica (2)
Treatment name(s)

(Panafcortelone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
neuromyelitis optica (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with neuromyelitis optica, who reported starting treatments within the last 5 years.
Last updated:

Who has neuromyelitis optica on PatientsLikeMe?


Age
Age Proportion # of patients
<20 13
20s 34
30s 106
40s 162
50s 137
60s 76
70+ 29
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 25
20-29 years 62
30-39 years 90
40-49 years 57
50-59 years 38
60-69 years 11
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 114
Female 452

Types
Condition Types Proportion # of patients
Asian optic-spinal MS 9
Monophasic NMO 15
NMO spectrum disorder 79
Relapsing NMO 150
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 294
Not Diagnosed 55

These charts show data from NMO patients who have completed their condition history
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